Caring for her grandma revealed an underappreciated task almost all caregivers have to do.

When Miles Taylor was a teenager, she and her little brother moved in with their grandma Betty, who essentially became a single parent at nearly 80 years old.

An untenable family situation prompted the change, which Betty took in stride. It was a move that must have taken some "grit and guts and probably a real fine-tuned sense of humor" on Betty's part, says Taylor.

Taylor is now a sociologist at Florida State University. She says Betty, who died in 2015 at the age of 100, was a huge influence in her life. Betty was resilient, quick-witted, compassionate, and could at times be incredibly stubborn (as the doctor who tried to get Betty to stop eating candy learned). "And she had an unbelievable capacity for love," says Taylor.


Miles Taylor and her grandma Betty. Photos used with permission.

As Betty got older, she started needing some extra help, and Taylor was there to contribute.

"It was small things in the beginning," Taylor says. "She needed help putting up a Christmas tree. Then, as she got a bit older, she needed help with getting groceries delivered." Taylor, her brother, friends, and neighbors all helped out.

Then, in 2011, when Betty was about 96, she fell and broke a bone in her back. Taylor knew that from then on, Betty would need a lot more than just help with the Christmas tree, so she stepped into the role of Betty's full-time caregiver.

In 2015, about 1 in 7 American adults served as caregivers for someone over 50, according to an AARP report.

The numbers are even higher if you count those taking care of other recipients, like adults or children with injuries or disabilities. Many of these caregivers are pretty young as well — about a quarter are under 35.

Although many people feel positively about being caretakers, it can be physically, mentally, and emotionally tough work. In fact, there have been many studies and papers about the stresses of being a caretaker.

Most of these studies have focused on the caregivers' relationships or on the stresses around very personal tasks (such as helping people bathe). But when Taylor stepped into this role, she realized there was another, huge aspect of a caregiver's job — one she had known about but couldn't have predicted how stressful it'd be.

Navigating the health care system blindsided Taylor.

Handling Betty's personal care was one thing, but Taylor was surprised at how much time she had to spend just figuring out the health care system. Even as someone who had time and a bit of inside knowledge, it was really difficult.

For example, Taylor knew if Betty was ever to get mobile again after the fall, she'd need rehab to help with strength and balance. But a snafu with how the hospital had listed Betty on their charts meant her insurance wouldn't cover rehab. It took weeks to fix.

"It was very frustrating," Taylor says. Over and over again, she experienced similar issues.

Though Taylor says she was never disappointed in the care Betty received, many of the various institutions — hospitals, insurance agencies, care services — were fragmented. They didn't communicate, which meant the job of sorting everything out fell to Taylor.

When Taylor talked to other caregivers, many of them felt the same way.

Now Taylor has published a paper she hopes will help reveal this invisible workload.

As she cared for Betty, Taylor found support in her friend and colleague Dr. Amélie Quesnel-Vallée of McGill University in Quebec. Quesnel-Vallée was also caring for an older family member — her mother. And though Quesnel-Vallée lives in Canada, they found a lot of similarities in their experiences.

Together, they wrote a scientific paper informed by their own experiences as caregivers, published in The Gerontologist. They're hoping researchers and policymakers will take notice and maybe even make some long-term changes.

"It's important those caregiving hours and that caregiving stress is recognized," says Taylor.

But they also had a message — not just for health care professionals, but for other caregivers too:

"On the more personal side of things, a message we'd like to send out to caregivers themselves is they're not alone," says Taylor.

The AARP report suggested that most caregivers in the U.S. are stepping into this caregiver-plus-case-worker kind of role. It's important for caregivers to know that although it's often invisible, their work is valuable and valued.

Caregiving is hard, often invisible work. Through sharing stories like this, we can help bring it into the light and give it the attention and credit it deserves.

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Truth

Don't test on animals. That's something we can all agree on, right? No one likes to think of defenseless cats, dogs, hamsters, and birds being exposed to a bunch of things that could make them sick (and the animals aren't happy about it, either). It's no wonder so many people and organizations have fought to stop it. But did you ever think that maybe brands are testing products on us too, they're just not telling us they're doing it?

I know, I know, it sounds like a conspiracy theory, but that's exactly what e-cigarette brands like JUUL (which corners the e-cigarette market) are doing in this country right now, and young people are on the frontlines of the fallout. Most people assume that the government would have looked at devices that allow people to inhale unknown chemicals into their lungs BEFORE they hit the market. You would think that someone in the government would have determined that they are safe. But nope, that hasn't happened. And vape companies are fighting to delay the government's ability to evaluate these products.

So no one really knows the long-term health effects of e-cigarette use, not even JUUL's CEO, nor are they informing the public about the potential risks. On top of that, according to the FDA, there's been a 78% increase in e-cigarette usage among high school and middle school-aged children in just the last two years, prompting the U.S. Surgeon General to officially recognize the trend as an epidemic and urge action against it.

These facts have elicited others to take action, as well.

Truth Initiative, the nonprofit best known for dropping the real facts about smoking and vaping since 2000 through its truth campaign. We don't do PSAs. We also need to update so to explain truth – the nonprofit behind the truth youth smoking prevention campaign – you could also say this in a funny way – best known for sharing the facts about smoking and vaping or pull from some old campaigns. Just layer in a description of truth and who the campaign is., is now on a mission to confront e-cigarette brands like JUUL about the lack of care they've taken to inform consumers of the potential adverse side effects of their products. And they're doing it with the help of animal protesters who are tired of seeing humans treated like test subjects.

The March Against JUUL | Tested On Humans | truth www.youtube.com

"No one knows the long-term effects of JUULing so any human who uses one is being used as a lab rat," says, appropriately, Mario the Sewer Rat.

"I will never stop fighting JUUL. Or the mailman," notes Doug the Pug, the Instagram-famous dog star.

Truth, the national counter-marketing campaign for youth smoking prevention, hopes this fuzzy, squeaky, snorty animal movement arms humans with the facts about vaping and inspires them to demand transparency from JUUL and other e-cigarette companies. You can get your own fur babies involved too by sharing photos of them wearing protest gear with the hashtag #DontTestOnHumans. Here's some adorable inspo for you:

The dangerous stuff is already out there, but with knowledge on their side, young people will hopefully make the right choices and fight companies making the wrong ones. If you need more convincing, here are the serious facts.

Over the last decade, 127 e-cigarette-related seizures were reported, which prompted the FDA to launch an official investigation in April 2019. Since then, over 215 cases of a new, severe lung illness have sprung up all over the country, with six deaths to date. While scientists aren't yet sure of the root cause, the majority of victims were young adults who regularly vaped and used e-cigarettes. As such, the CDC has launched an official investigation into the potential link.

Sixteen-year-old Luka Kinard, a former frequent e-cigarette-user, is one of the many teens who experienced severe side effects. "Vaping was my biggest addiction," he told NowThis. "It lasted for about 15 months of my high school career." In 2018, Kinard was hospitalized after having a seizure. He also had severe nausea, chest pains, and difficulty breathing.

After the harrowing experience, he quit vaping, and began speaking out about his experience to help inform others and hopefully inspire them to quit and/or take action. "It shouldn't take having a seizure as a result of nicotine addiction like I had for teens to realize that these companies are taking advantage of what we don't know," Kinard said.

Teens are 16 times more likely to use e-cigarettes than adults, and four times more likely to take up traditional smoking as a result, according to truth, and yet the e-cigarette market remains virtually unregulated and untested. In fact, companies like JUUL continue to block and prevent FDA regulations, investing more than $1 million in lawyers and lobbying efforts in the last quarter alone.

Photo by Lindsay Fox/Pixabay

Consumers have a right to know what they're putting in their bodies. If everyone (and their pets) speaks up, the e-cigarette industry will have to make a change. Young people are already taking action across the country. They're hosting rallies nationwide and on October 9 as part of a National Day of Action, young people are urging their friends and classmates to "Ditch JUUL." Will you join them?

For help with quitting e-cigarettes, visit thetruth.com/quit or text DITCHJUUL to 88709 for free, anonymous resources.

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True
LUSH

Handmade cosmetics company Lush is putting its money where its mouth is and taking a bold step for climate change action.

On September 20 in the U.S. and September 27 in Canada, Lush will shut the doors of its 250 shops, e-commerce sites, manufacturing facilities, and headquarters for a day, in solidarity with the Global Climate Strike taking place around the world. Lush is encouraging its 5000+ employees "to join this critical movement and take a stand until global leaders are forced to face the climate crisis and enact change."

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via Cadbury

Cadbury has removed the words from its Dairy Milk chocolate bars in the U.K. to draw attention to a serious issue, senior loneliness.

On September 4, Cadbury released the limited-edition candy bars in supermarkets and for every one sold, the candy giant will donate 30p (37 cents) to Age UK, an organization dedicated to improving the quality of life for the elderly.

Cadbury was prompted to help the organization after it was revealed that 225,000 elderly people in the UK often go an entire week without speaking to another person.

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Well Being

The fine folks at Forbes are currently falling all over themselves trying to clean up the mess they created by publishing their 2019 list of 100 Most Innovative Leaders.

The problem: The list included 99 men and one woman. For those not so good with the math, that means according to Forbes, only 1% of the country's most innovative leaders are female.

Have you ever watched a movie that's so abysmally bad that you wonder how it ever even got made? Where you think, "Hundreds and hundreds of people had to have been directly involved in the production of this film. Did any of them ever think to say, 'Hey, maybe we should just scrap this idea altogether?"

That's how it feels to see a list like this. So how did Forbes come up with these results?

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