upworthy
More

A Comedian Has Some Truth To Drop About Diversity, And You'll Want To Listen

America's favorite Indian comedian guy, Aziz Ansari (sorry, Deepak Chopra!), talked to Conan O'Brien about the progress he's seen in Hollywood with the representation of Asian Americans on screen. Now we have real Asian people playing Asian characters! Take that, racist grandmas!

Phone or handwritten? The great debate ensues.

Are you the type of person who always writes grocery lists by hand? Perhaps on the back of a receipt, in a special notebook, or on an index card? Do you insist on this method, even though you’re the only one in the store unfurling paper like an ancient scroll while everyone has their heads down, tapping away at their phones?

Lists are undoubtedly important. In a recent poll, research revealed that the average British adult writes an average of three to-do lists a week—which, in some cases, can add up to 9,766 lists in a lifetime. “Evidently, we all rely on lists for one aspect of life or another,” commented Shahbaz Khan from STABILO, a high-quality pen and pencil company.

But when it comes to the actual list-making, does the method in which you create it really matter? Apparently, yes. And your choice, handwritten or digital, can say a lot about your personality.


grocery list, grocery, lists, handwritten, handwritingPeople who write their lists by hand might be able to remember them better.Photo credit: Canva

If you prefer handwriting, you’re likely…

To have a mind that operates like a filing cabinet.

In 2024, two professors at the Norwegian University of Science and Technology, Dr. Audrey L.H. Van der Meer and F.R. (Ruud) Van der Weel, found that handwriting activates more elaborate and widespread brain connectivity patterns compared to typing. They suggest that the physical act of moving your hand while writing creates spatial and temporal patterns in the brain that promote learning.

In a similar study, Japanese researchers found that participants who wrote calendar events by hand on paper showed increased brain activity—particularly in memory regions—compared to those who recorded the same information on smartphones. The hand writers also recalled the information 25% faster than those who typed. Writing by hand triggers extra neural activity in regions tied to learning and memory. So, no matter how messy your handwriting might be, that grocery list might also be giving your memory a little work-out.

To be naturally conscientious and understand the secret to success.

Conscientiousness isn't the same as self-control or self-restraint—rather, it refers to a person's tendency to be organized, reliable, goal-directed, and self-disciplined. It's no surprise, then, that those who score highly in conscientiousness tend to be successful: they aim for high-profile outcomes and have the ability to develop well-thought-out plans to accomplish their goals.

Comfortable getting tactile.

Nothing quite compares to writing with your perfect pen. (By the way, what's yours? A Pilot G2-2? Uni-ball Vision Elite? Or perhaps something fancy, like the Squire Classic Pen from Baronfig?) It's a complete sensory experience as your pen glides across paper. This physical connection helps create a deeper engagement with the task at hand.

woman, child, grocery, shopping, listWriting your list by hand could curb impulse shopping. Photo credit: Canva

To not buy on impulse.

Yanliu Huang and Zhen Yang from the LeBow College of Business at Drexel University examined how handwritten shopping lists differ from digital ones. Their research showed that people who write lists on paper tend to make more planned purchases and fewer impulse buys.

However, there are a few downsides to a handwritten grocery list…

Let's face it: sometimes you can't read your own handwriting. When rushing, you might scribble illegibly, forget items, or leave the paper at home entirely. (Pro tip for forgetful hand-writers: snap a photo of your list before heading out, just in case.)

Paper lists are also cumbersome to update on the go. Picture this—you've just remembered you need onions while backing out of the driveway, but now you're scrambling for a pen. Don't do this. Plus, paper lists make it difficult to coordinate shopping with other people.


If you’re #DigitalForever, you’re likely…

In a poll of 2,000 people in the United Kingdom, researchers found that when it comes to list-making, only 40% use their phones, while 63% write on notepads and 24% use sticky notes. So congrats—you're right in the middle!

Extremely efficient and organized.

Your phone is a miracle list-maker: people who use digital lists value practicality over sentimentality—they appreciate the power of automatic sorting, expense tracking, and integrated coupon features. These lists can be updated instantly and accessed from almost any device, making them the most efficient, streamlined option.

Someone who uses data to make decisions.

Beyond expense tracking, many apps provide nutritional data, meal planning suggestions, and inventory management—helping you make smarter, healthier food choices. You're not just shopping anymore; you're strategically planning your nutrition.

groceries, grocery shopping, produce, lists, shopping, nutritionDigital lists are perfect for collaborations. Photo credit: Canva

Collaborating with someone in the kitchen.

The beauty of a digital list is that it can be shared with others in real time, allowing multiple people to add items seamlessly. This eliminates miscommunications and duplicate purchases while reducing paper waste and promoting environmentally friendly habits.

The digital life has its downsides, too…

Taking a break from your phone can be refreshing, but keeping your grocery list there means more screen time—potentially leading to digital fatigue or distractions from notifications and other apps. There's also the practical concern: what if your phone dies, you lose Internet connection, or your service drops out while shopping?

Grocery shopping can be such a treat. Whether you use digital lists, handwritten scribbles, or memory tricks to track what you need, there's no wrong approach. The “best” way to write a grocery list depends on you: your personal preferences, your lifestyle, and what works for your routine. Ask yourself, “What will make me feel the most organized and calm?” Then let your grocery list lead the way.


Pop Culture

Brit shares the one-word 'dead giveaway' that American actors can't do an English accent

“There is one word that is a dead giveaway that an English character in a movie or a TV show is being played by an American."

via Warner Bros Discovery

Peter Dinklage on "Game of Thrones"?

When it comes to actors doing accents across the pond, some Americans are known for their great British accents, such as Natalie Portman ("The Other Boleyn Girl"), Robert Downey, Jr. ("Sherlock Holmes"), and Meryl Streep ("The Iron Lady"). Some have taken a lot of heat for their cartoonish or just plain weird-sounding British accents, Dick Van Dyke ("Mary Poppins"), Kevin Costner ("Robin Hood: Prince of Thieves") and Keanu Reeves ("Bram Stoker's Dracula").

Some actors, such as Tom Hardy (“The Drop”) and Hugh Laurie (“House”), have American accents so good that people have no idea they are British. Benedict Townsend, a London-based comedian and host of the “Scroll Deep” podcast, says there is one word that American actors playing characters with a British accent never get right. And no, it’s not the word “Schedule,” which British people pronounce the entire first 3 letters, and Americans boil down to 2. And it’s not “aluminum,” which British and American people seem to pronounce every stinking letter differently.


@benedicttown The one word American actors aways get wrong when doing an English accent
♬ original sound - Benedict Townsend

What word do American actors always get wrong when they do British accents?

“There is one word that is a dead giveaway that an English character in a movie or a TV show is being played by an American. One word that always trips them up. And once you notice it, you can't stop noticing it,” Townsend says. “You would see this lot in ‘Game of Thrones’ and the word that would always trip them up was ‘daughter.’”

Townsend adds that when British people say “daughter,” they pronounce it like the word “door” or “door-tah.” Meanwhile, Americans, even when they are putting on a British accent, say it like “dah-ter.”

“So top tip if you are an actor trying to do an English accent, daughter like a door. Like you're opening a door,” Townsend says.


What word do British actors always get wrong when doing American accents?

Some American commenters returned the favor by sharing the word that British actors never get right when using American accents: “Anything.”

"I can always tell a Brit playing an American by the word anything. An American would say en-ee-thing. Brits say it ena-thing,” Dreaming_of_Gaea wrote. "The dead giveaway for English people playing Americans: ‘Anything.’ Brits always say ‘EH-nuh-thin,’” marliemagill added. "I can always tell an actor is English playing an American when they say ‘anything.’ English people always say it like ‘enny-thin,’” mkmason wrote.


What is the cot-caught merger?

One commenter noted that the problem goes back to the cot-caught merger, when Americans in the western US and Canadians began to merge different sounds into one. People on the East Coast and in Britain pronounce them as different sounds.

“Depending on where you live, you might be thinking one of two things right now: Of course, ‘cot’ and ‘caught’ sound exactly the same! or "There’s no way that ‘cot’ and ‘caught’ sound the same!” Laura McGrath writes at DoYouReadMe. “As a result, although the different spellings remain, the vowel sounds in the words cot/caught, nod/gnawed, stock/stalk are identical for some English speakers and not for others.” For example, a person from New Jersey would pronounce cot and catch it as "caht" and "cawt," while someone from Los Angeles may pronounce them as "caht" and "caht."

To get a better idea of the big difference in how "caught" and "cot" are pronounced in the U.S., you can take a look at the educational video below, produced for a college course on linguistics.


- YouTubeyoutu.be

American actors owe Townsend a debt of gratitude for pointing out the one thing that even the best can’t seem to get right. For some actors, it could mean the difference between a great performance and one that has people scratching their heads. He should also give the commenters a tip of the cap for sharing the big word that British people have trouble with when doing an American accent. Now, if we could just get through to Ewan McGregor and tell him that even though he is fantastic in so many films, his American accent still needs a lot of work.

This article originally appeared last year.

via Public Domain

Photos from the 1800s were so serious.

If you've ever perused photographs from the 19th and early 20th century, you've likely noticed how serious everyone looked. If there's a hint of a smile at all, it's oh-so-slight, but more often than not, our ancestors looked like they were sitting for a sepia-toned mug shot or being held for ransom or something. Why didn't people smile in photographs? Was life just so hard back then that nobody smiled? Were dour, sour expressions just the norm?

Most often, people's serious faces in old photographs are blamed on the long exposure time of early cameras, and that's true. Taking a photo was not an instant event like it is now; people had to sit still for many minutes in the 1800s to have their photo taken.

Ever try holding a smile for only one full minute? It's surprisingly difficult and very quickly becomes unnatural. A smile is a quick reaction, not a constant state of expression. Even people we think of as "smiley" aren't toting around full-toothed smiles for minutes on end. When you had to be still for several minutes to get your photo taken, there was just no way you were going to hold a smile for that long.

But there are other reasons besides long exposure times that people didn't smile in early photographs.


mona lisa, leonardo da vinci, classic paintings, famous smiles, art"Mona Lisa" by Leonardo da Vinci, painted in 1503Public domain

The non-smiling precedent had already been set by centuries of painted portraits

The long exposure times for early photos may have contributed to serious facial expressions, but so did the painted portraits that came before them. Look at all of the portraits of famous people throughout history prior to cameras. Sitting to be painted took hours, so smiling was out of the question. Other than the smallest of lip curls like the Mona Lisa, people didn't smile for painted portraits, so why would people suddenly think it normal to flash their pearly whites (which were not at all pearly white back then) for a photographed one? It simply wasn't how it was done.

A smirk? Sometimes. A full-on smile? Practically never.

old photos, black and white photos, algerian immigrant, turban, Algerian immigrant to the United States. Photographed on Ellis Island by Augustus F. Sherman.via William Williams/Wikimedia Commons

Smiling usually indicated that you were a fool or a drunkard

Our perceptions of smiling have changed dramatically since the 1800s. In explaining why smiling was considered taboo in portraits and early photos, art historian Nicholas Jeeves wrote in Public Domain Review:

"Smiling also has a large number of discrete cultural and historical significances, few of them in line with our modern perceptions of it being a physical signal of warmth, enjoyment, or indeed of happiness. By the 17th century in Europe it was a well-established fact that the only people who smiled broadly, in life and in art, were the poor, the lewd, the drunk, the innocent, and the entertainment […] Showing the teeth was for the upper classes a more-or-less formal breach of etiquette."

drunks, classic painting, owls, malle babbe, paintings"Malle Babbe" by Frans Hals, sometime between 1640 and 1646Public domain


In other words, to the Western sensibility, smiling was seen as undignified. If a painter did put a smile on the subject of a portrait, it was a notable departure from the norm, a deliberate stylistic choice that conveyed something about the artist or the subject.

Even the artists who attempted it had less-than-ideal results. It turns out that smiling is such a lively, fleeting expression that the artistically static nature of painted portraits didn't lend itself well to showcasing it. Paintings that did have subjects smiling made them look weird or disturbing or drunk. Simply put, painting a genuine, natural smile didn't work well in portraits of old.

As a result, the perception that smiling was an indication of lewdness or impropriety stuck for quite a while, even after Kodak created snapshot cameras that didn't have the long exposure time problem. Even happy occasions had people nary a hint of joy in the photographs that documented them.

Another reason why people didn't smile in old photos is that dental hygiene wasn't the same as it is today, and people may have been self-conscious about their teeth. “People had lousy teeth, if they had teeth at all, which militated against opening your mouth in social settings,” Angus Trumble, the director of the National Portrait Gallery in Canberra, Australia, and author of A Brief History of the Smile, said, according to Time.


wedding party photo, wedding, old weddings, black and white, serious photos, no smilesEven wedding party photos didn't appear to be joyful occasions.Wikimedia Commons


Then along came movies, which may have changed the whole picture

So how did we end up coming around to grinning ear to ear for photos? Interestingly enough, it may have been the advent of motion pictures that pushed us towards smiling being the norm.

Photos could have captured people's natural smiles earlier—we had the technology for taking instant photos—but culturally, smiling wasn't widely favored for photos until the 1920s. One theory about that timing is that the explosion of movies enabled us to see emotions of all kinds playing out on screen, documenting the fleeting expressions that portraits had failed to capture. Culturally, it became normalized to capture, display and see all kind of emotions on people's faces. As we got more used to that, photo portraits began portraying people in a range of expression rather than trying to create a neutral image of a person's face.

Changing our own perceptions of old photo portraits to view them as neutral rather than grumpy or serious can help us remember that people back then were not a bunch of sourpusses, but people who experienced as wide a range of emotion as we do, including joy and mirth. Unfortunately, we just rarely get to see them in that state before the 1920s.

This article originally appeared last year.

A heroic pizza delivery man.

A story out of Indiana shows a point that we often prove on Upworthy: even though some people out there do wrong, there are far more folks out there willing to do what’s right. Back in January, Connor Stephanoff, an employee for Rock Star Pizza in Indiana, braved his way a half mile through a snowstorm wearing sneakers and sweatpants to deliver $40 worth of pizza to a home in an affluent neighborhood. All he got for a tip was $2.

Officer Richard Craig, who goes by Officer Craig on TikTok, saw the delivery man’s incredible effort to get the pizza to the right home, recorded it on video and posted it to TikTok. His dedication astounded the officer, but he couldn’t believe how the young man was treated. “Look at this man. This man walked through hell and high water to deliver a pizza,” Craig said in the video. But he was shocked to learn how cheap the tip was. “Absolutely insane. Do better folks,” he said.

@officercraig $2 TIP SHOULD BE A CRIME! Whoever did this: #SHAMEFUL ROCKSTAR PIZZA HAS A ROCKSTAR DRIVER. (Brownsburg, IN.) This guy is a RARE breed. During today’s all day snowstorm, crashes and slideoffs were coming in near 30 calls an hour. This school bus had a minor crash. The bus slid backwards and sideways down a hill and gets stuck, blocking this neighborhood street, and making it completely impassable. The roads were so bad, it took us 20 min. to get 3-4 miles. THIS #DELIVERYDRIVER pulled up before officers arrived. The delivery was about 1/4 mile past where the bus was blocking the street. This young man did not allow this to discourage him. He didn’t call his manager to complain, he didn’t call the customer and tell them their $40 pizza order could not be delivered. Oh no. THIS MAN IS BUILT DIFFERENT. He would not be discouraged by the obstacles he was encountering, which included a 1/2 mile hike round trip in the cold, wet snow. He parked his vehicle at the top of the hill, got out, wearing grey sweats, Nikes, and NO COAT nor GLOVES. He grabbed this #RockstarPizza, and took off hiking thru the very cold, and wet snow with the pizza in tow. It was the beginning of his shift at 4:30p on a Friday afternoon, BUT he was determined this family got their pizza. This is in a more affluent neighborhood, and I’m sure he thought he would be rewarded properly for his RARE display of PRIDE and DEDICATION to his work- that is often times not seen by some of his generation. But more so, he wanted to ensure this family got their pizza to their door! So they did not have to leave the confines of their warm, comfortable, AND VERY NICE home. He got my attention as I see him walking in the middle of street after he made the delivery. I said outloud “what does this guy think he is doing?” As I initially thought he was a neighbor coming to “rubberneck” the crash. The bus driver told me he walked by once and was delivering a pizza. I didn’t believe that fully because what young pizza delivery guy in 2025 would do this??? None that I know! Not believing it completely, I hit RECORD and ask this young man. I was dumbfounded and in disbelief when he confirmed. But most of all - I was impressed- AND STILL AM! I’m proud to witness this firsthand. But my excitement and pride quickly turned to frustration when I asked him about his tip. WHO TIPS A GUY WHO RISKS EVERYTHING TO DRIVE FOOD TO YOUR DOOR LIKE THIS?? Let alone, gets out to hike it to you while every road was nearly impassable! I REALLY HOPE this algorithm is good enough that whomever DID THIS, SEES THIS! You should be ashamed of yourself whoever u are!! SHAME ON YOU. A $40 pizza delivered and a $2 tip! EVERYONE IN THIS NEIGHBORHOOD CAN AFFORD IT. AND IF THEY CANT, STOP ORDERING PIZZA YOU CANT AFFORD! After processing he only received $2, and what I just witnessed, I reached for my own wallet. To PAY THE TIP FOR SOMEONE THAT PROBABLY MAKES DOUBLE MY SALARY. But I did not want this young man discouraged. Unfortunately my wallet was in my Tahoe, which was at the top of the big hill. I quickly as I could chased him down up the hill giving him the little cash I had in my wallet. (About $15) HE DESERVED MUCH MORE. Not sure who this guy is, BUT IF YOU DO, PLZ TAG HIM, SHOW HIM SOME ❤️❤️❤️ AND GIVE HIM THE RECOGNITION HE DESERVES! Well done sir.🫡#IncredibleWork #Rockstar #Brownsburg #Indiana #delivery #Driver #snow #PizzaGuy #pizza @Dave Portnoy #LifeLawAndFootball #dedicated #workethic @Pat McAfee Show Clips ♬ original sound - Officer Craig


How much should I tip for a pizza?

NerdWallet suggests that people tip a pizza delivery person the amount they'd pay for a regular sit-down dinner, 15% to 20%. However, it notes that you should add more if the pizza is delivered in poor weather conditions. So, in this situation, the people who received the pizza should have at least tipped $7, which is still cheap considering the weather.

The officer then posted a follow-up video (which has since been deleted) in which he gave a better look at the icy terrain Stephanoff had to walk through. He noted that he was in an affluent neighborhood where most people should be able to afford a decent tip, especially for a guy who went above and beyond.

pizza delivery, feel good stories, indiana, gofundme, local news, positive newsA pizza guy receiving a not-so-great tipPhoto credit: Canva

After the videos went viral, Craig started a GoFundMe campaign for the delivery man to reward him for his efforts and prevent him from becoming discouraged. “I witnessed firsthand the work ethic, dedication, and determination by this young man while I was on the scene of a crash during Friday's snowstorm here in Indiana," he wrote on the GoFundMe page. "He received just a $2 tip - from a home in a very affluent neighborhood."

“I ran to my police vehicle to grab my wallet to give him the little cash that I had (about $15) which I didn’t feel is enough," he added. "I would LOVE to raise at least $500 for this guy!" As of today, the fundraiser has earned over $45,575.

Stephanoff’s heroic effort to deliver a pizza earned him praise from his boss, Rock Star Pizza manager Ron Mathews. "He wasn't here in the restaurant; he had no idea people were watching him. But he got out, walked it to the house, and came back without any expectations,” Mathews told WRTZ.

Matthews told NBC affiliate WSAZ that Stepahnoff’s story is a reminder that many folks have it rough these days and to look out for one another. “Everyone is going through it tough. Everyone has it. It could be you. It could be the delivery driver. But at the end of the day, we’re all people," he said. "Just be nice to the next person."

This article originally appeared in January

Community

They thought their son lived an isolated life. But when he died, friends showed up in droves.

Mats Steen's parents were shocked to learn their severely disabled son had lived a rich, independent life they knew nothing about.

Mats Steen lived a secret life that his family only discovered after he died.

Mats Steen was only 25 years old when he passed away, his body succumbing to the genetic disease that had slowly taken his mobility since childhood. He'd lived in a wheelchair since his early teens, and by his 20s, his physical abilities had deteriorated to the point of only being able to move his fingers. He could push buttons and use a mouse, and he spent nearly all of his waking hours playing video games in his parents' basement.

His family loved him and cared for him through it all, giving him as much of a normal life as they could. But they also lamented everything they knew he'd missed out on. "Our deepest sorrow lay in the fact that he would never experience friendships, love, or to make a difference in people's lives," Mats' father shares.

Mats left behind the password to a blog he kept. Not knowing if anyone would actually read it, his parents published the news of Mats' passing in a blog post, adding their email address in case anyone wanted to reach out.

Much to their surprise, messages began pouring in from around the world—not just with condolences, but with heartfelt stories from people who called Mats their friend.

The Steens soon discovered that their son had lived a much fuller life than they'd ever imagined—one that included all the things they always wished for him.

As his online life was revealed, the family learned that Mats began his days with a routine 30-minute sprint through the forest. He frequented cafes and pubs, chatting with strangers and flirting with women. He sat by campfires having heart-to-heart conversations. He made friends and enemies. He fought heroic battles. He supported people in times of need. He gave advice that people took. He experienced his first kiss.

And he did it all as "Ibelin," his handsome, muscular avatar in the online game World of Warcraft.

- YouTubeyoutu.be

Mats' life is showcased in the documentary The Remarkable Life of Ibelin, in which his parents share the story of how they discovered their son's group of friends they didn't know he had.

People who've never played an open world roleplay game like World of Warcraft may wonder how real community can be built through it, but Mats' story proves it's possible. The friends he made through the game have shared the real influence he'd had on their real lives, from helping them with problems they were facing to empowering them to make positive changes in their relationships.

Though he never met them face-to-face, Mats' online friends say he made a significant impact on them.

A young woman Ibelin had connected with as a teenager—the one with whom he'd shared that first virtual kiss—shared that her parents had taken away her computer when they feared gaming was interfering with her studies. When she logged on at a local library, Mats gave her a letter he had written to give to her parents, encouraging them to talk with her about her gaming hobby and to work out a solution together that didn't require her to give it up completely. She printed it and gave it to them. Miraculously, it worked.

Another woman had been having a hard time connecting with her autistic son as a young adult. When she talked with Ibelin about her struggles, he suggested that she and her son start gaming together and connect in that way first. Eventually, that connection via the virtual world led to warmer in-person interactions between them—and a life-changing shift in their relationship.

"I don't think he was aware of the impact that he had done to a lot of people," the mother shared.

Mats interacted with the same online friends as Ibelin for years, going through the kinds of ups and downs all friendships experience. He kept his physical condition a secret until close to the end of his life, when he finally opened up to another player who convinced him to share his reality with the others. Some traveled from other countries to attend his funeral, with one of them speaking on the group's behalf and a few of them serving as pallbearers. Those who knew Ibelin also held a memorial in-game at his virtual gravesite—a tradition that has spread beyond just his own guild.

Typically, we think of someone escaping the real world and spending hours a day playing video games as unhealthy, but for Mats, it was a lifeline. As Ibelin, Mats was able to have a level of independence and a rich social life that simply wasn't possible for him in the offline world—an uniquely modern phenomenon that technology and human creativity have made possible.

Mats' impact on his online community was real, and 10 years after his passing his impact is spreading even further.

Duchenne muscular dystrophy (DMD), the genetic disease that Mats lived with and ultimately died from, affects 300,000 boys worldwide. It only affects males and it has no cure. But CureDuchenne, a global nonprofit dedicated to funding and finding a cure, partnered with video game company Blizzard Entertainment's World of Warcraft in Mats' honor from the end of 2024 until January 7, 2025. During that window, World of Warcraft players could purchase a limited-edition pet fox named Reven ("fox" in Norwegian). The Reven Pack, which includes a transmog backpack and Reven’s Comfy Carrier, costs $20, with 100% of the purchase price being donated to CureDuchenne.

The Reven Pack on World of Warcraft—100% of purchase cost goes to the CureDuchenne foundation.World of Warcraft/CureDuchenne

“Mats Steen lived a life in World of Warcraft that he couldn’t in the real world as he fought Duchenne muscular dystrophy alongside his incredible family, who I’m proud to have met and fallen in love with,” said Holly Longdale, executive producer of World of Warcraft. “Working with CureDuchenne for our Charity Pet Program, in honor of Mats’ memory, allows us to harness the power of our phenomenal global community to bring meaningful impact to so many lives.”

In February 2025, CureDuchenne announced that The Reven Pack raised over two million dollars in support. Later in the month, Debra and Hawken Miller of Cure Duchenne spoke with ViceVice and shared how The Reven Pack helped raise valuable awareness about Duchenne in addition to funds. For those interested in updates, the site keeps donors and supporters current on all developments in Duchenne research news.

Mats life was truly impactful in many ways and to many people. His love, kindness, and friendship touched lives and his legacy continues to help those struggling with this rare disease. According to the site, since the inception of CureDuchenne, life expectancy for those with the disease has increased by a decade and over fifty million dollars have been raised for research, education, and care.

You can learn more about Mats' story in the award-winning documentary, The Remarkable Life of Ibelin on Netflix.

This article originally appeared last year. It has been updated.