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19 things that happen when the government shuts down.

On May 2, 2017, President Trump tweeted that maybe what the government needs is "a good 'shutdown.'"

It would be to "force a partisan confrontation over federal spending," according to The New York Times — as if the American government were a kid who needs a timeout. But that's just not how government works. When politicians can't get their act together, the rest of the country suffers.

How do we know this? Because in 2013, it did shut down. For 16 days. It, uh, wasn't great. If you (and the government) need a reminder of what's at stake, here are 20 things that happened to real people because of it:


1. Furloughed government employees were forced to take part-time jobs.

One U.S. Capitol employee took a job as a middle-school janitor, according to the Washington Post. Another family had to lay off a reading specialist they hired for their autistic son. At its peak, the shutdown put about 850,000 government jobs on hold.

2. National parks closed.

Photo from David McNew/Getty Images.

According to the Los Angeles Times, Cleo Tung and Matthew Locascio had to reschedule their wedding after the government closed Yosemite National Park. Another group was told their reservation to raft down the Grand Canyon — a plan 18 years in the making — wasn't going to happen.

3. National wildlife refuges closed too. Officials had to cancel a wild pony roundup on the Virginia coast.

Each year, workers round up the wild ponies on Assateague Island, conducting vet checks, giving immunizations, and collecting and selling new foals. The event had to be cancelled because the national wildlife refuge was closed. The same park closure also stopped a yearly peregrine falcon survey.

4. Outdoor-dependent businesses near the parks and refuges suffered greatly.

Closing Kenai National Wildlife Refuge in Alaska cost fly-fishing guide Fred Telleen thousands of dollars, the Washington Post reported, and closing Zion National Park in Utah cost the Zion Park Inn tens of thousands of dollars, reported The New York Times.

5. If Americans thought they'd hit a museum instead, tough luck. National museums and monuments were closed too.

Photo by Spencer Platt/Getty Images.

The shutdown affected the Smithsonian museums and national monuments such as the Statue of Liberty and the Lincoln Memorial.

6. But it didn't stop 92 veterans from visiting the World War II Memorial.

The Mississippi Gulf Coast Honor Flight veterans dodged barricades to tour the temporarily closed site.

7. And this red-blooded American helped mow the Lincoln Memorial's lawn.

Photo from AP Photo/Manuel Balce Ceneta.

Chris Cox from South Carolina took it upon himself to mow the lawns and empty the garbage cans on the National Mall. He refused donations, saying the point was to send a message to the government.

8. Meanwhile, 50,000 North Carolina families were left without baby formula.

The shutdown locked about 50,000 families in the state out of the Special Supplemental Nutrition Program for Women, Infants, and Children, which provides vouchers to low-income moms and families.

9. Homeowners at Lake Mead were told to vacate.

Joyce and Ralph Spencer, whose home is located on government land, were given 24 hours to find new accommodations, according to the Washington Times.

10. $4 billion dollars worth of tax refunds were delayed.

Tax refunds aren't just a nice bonus — they're money that's legitimately owed to workers and families. Checks had to be delayed because of staffing issues at the IRS.

11. Farmers' planting plans were thrown into disarray.

When the government shut down, it stopped providing insurance rate and price predictions to farmers. Combine that with a frozen-at-the-time farm bill, and it's understandable why farmers like Val Wagner said they were having trouble planning the next year's crop.

12. Potentially life-saving clinical trials got all scrambled up.

The shutdown furloughed about three-quarters of the National Institutes of Health's staff, putting a freeze on new clinical trial enrollments. About 200 patients a week had to be deferred, wrote the L.A. Times.

13. Alaskan crab fishermen were idled on the docks, waiting for NOAA permits.

Crab fishermen depend on the National Oceanic and Atmospheric Administration to set quotas and issue licenses. The shutdown meant the crews had to sit around waiting.

14. New airplanes were delayed.

Photo by Saul Loeb/AFP/Getty Images.

JetBlue and US Airways couldn't get new Airbus planes because the Federal Aviation Administration had furloughed the workers who certify them for flight.

15. In Daphne, Alabama, a domestic violence shelter had to ask the city for emergency funding.

A victim of domestic violence at a safe house in 2010. That year, domestic violence shelters in California experienced a similar crisis due to a state budget crisis. Photo by Rich Pedroncelli/AP.

The city came through with funds for the The Lighthouse, but not all shelters were so lucky. The White Buffalo Calf Woman Society, which serves the Rosebud Reservation in South Dakota, said they had to turn at least four people away.

16. Native American communities lost big.

In Fort Yukon, Alaska, for instance, the political brouhaha shut down jobs, scholarships, and aid programs.

17. Asylum-seekers' cases were delayed or frozen entirely.

A Congolese doctor, applying for U.S. asylum after he spoke out about human rights atrocities, had his case frozen. The already backed-up system became even slower after courts shut down, a situation one lawyer called "a nightmare."

18. An investigation into Dartmouth College's sexual assault policies ground to a halt.

The college was under investigation after students complained the college hadn't been reporting or prosecuting sexual violence on campus. The shutdown paused the investigation.

19. Government workers grew beards.

With nothing else to do, furloughed employees grew beards and posting them on social media, leading to what must be one of our country's lowest moments: the creation of the #ShutdownBeards hashtag.

Ultimately, the 2013 shutdown cost the country about $24 billion.

According to the Standard & Poor's rating agency, the shutdown ended up draining $1.5 billion a day from the American economy.

So no, Mr. President. A government shutdown isn't a good thing.

Photo by Mark Wilson/Getty Images.

These are just a handful of the shutdown's effects. From passport applications to airplane accident investigations, we depend on the government to do its job. When politicians play games, real people get hurt.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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