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Angela Eilers wanted to believe the push to upend the Affordable Care Act was finally over.

While "skinny repeal," the GOP's last attempt to gut the law, failed in July, she sent a handwritten thank-you note to every senator that voted against it. She saved the most elaborate and effusive for John McCain, Susan Collins, and Lisa Murkowski, the senators who broke with their own caucus to vote the bill down. Eilers was relieved for her daughter Myka, who was born with pulmonary stenosis, a congenital heart defect that required open-heart surgery to treat, and for her family, which she says can afford private market insurance thanks to the law.  

Still, she couldn't relax.


"I never let myself think that they weren’t going to stop," Eilers says. "I knew that they wouldn't stop until they got this done."

Her fears have come true with the most recent GOP push to replace the ACA. Eilers finds herself feeling disheartened and, perhaps most ominously, "defeated."

"Yesterday was the first day that it hit me really really hard," she admits.

With Senate Republicans taking another shot at Obamacare, many parents of children with chronic medical conditions are at their wits' end, trying to cope with having to fight, once again, to preserve their access to treatment.

What began as resolve has, for many, evolved into a growing sense of powerlessness — and anger.

"If these people lived on a pediatric cancer floor for weeks, months, or longer, they would reconsider their positions on health care because it is gut-wrenching," says Karen Lee Orosco, whose daughter was diagnosed with embryonal rhabdomyosarcoma, a rare form of childhood cancer, when she was 15 months old. Even with an intact ACA, Orosco had to crowdfund her daughter's surgery and is incensed that the new bill penalizes her home state of California with deep funding cuts.

Kate Greene, whose son Eddie suffers from severe hemophilia A, worries about returning to a time when those with the disease had to change jobs and move across state lines to afford, or even receive, coverage. Despite having visited her member of Congress with her family, she now makes 10 calls to them a day.

"I want Eddie to know I did everything I could to protect him," she says.

The most recent proposal, dubbed "Graham-Cassidy," includes drastic cuts to both Medicaid and the ACA's subsidies.

An NPR analysis found that the bill would allow states to permit insurers to omit the Affordable Care Act's essential health benefits from plans and deny or significantly upcharge consumers with pre-existing conditions.

The potential new law could also permit plans to bring back lifetime caps on coverage, a major fear for parents whose children have already exceeded them.

Frustration at the proposed cuts extends beyond the parents of young children.

Pat Nelson, whose 33-year-old son suffers from an aggressive form of brain cancer, says that calling her senator, Marco Rubio, which she does daily, feels like "hitting my head against a brick." She and her retired husband help her son cover his already sky-high medical bills, which she worries will explode if the bill becomes law.

"We would have to come up with more to pay for his healthcare," she says.  I'm not sure how we will be able to do that.

The fate of the bill continues to hang by a thread, as the key swing votes from July have yet to commit one way or another.

While Collins is seen to be leaning against the measure, neither McCain nor Murkowski have given more than a few clues about their vote.

On Sep. 20, a spokesperson for Mitch McConnell's office announced the majority leader's intent to hold a vote soon, leading some observers to believe the holdouts could be convinced to support the new proposal.

Until then, many say they have no choice but to keep fighting for their kids, exhausted as they may be.

Despite her despair over the bill's return, Eilers was buoyed when Jimmy Kimmel, a fellow "heart dad," used his opening monologue to rail against the bill Tuesday and accused bill co-author Louisiana Senator Bill Cassidy of lying "right to his face."

"He was angry, like us, like the rest of us," she says. "He was angry that this could impact his child. And I appreciated that."

Next week could bring relief or more fury.

In the meantime, Eilers plans to keep sending her representative a picture of Myka every day until the bill is either dead or law.

After all, she wonders, what else is there to do?

All images provided by Bombas

We can all be part of the giving movement

True

We all know that small acts of kindness can turn into something big, but does that apply to something as small as a pair of socks?

Yes, it turns out. More than you might think.

A fresh pair of socks is a simple comfort easily taken for granted for most, but for individuals experiencing homelessness—they are a rare commodity. Currently, more than 500,000 people in the U.S. are experiencing homelessness on any given night. Being unstably housed—whether that’s couch surfing, living on the streets, or somewhere in between—often means rarely taking your shoes off, walking for most if not all of the day, and having little access to laundry facilities. And since shelters are not able to provide pre-worn socks due to hygienic reasons, that very basic need is still not met, even if some help is provided. That’s why socks are the #1 most requested clothing item in shelters.

homelessness, bombasSocks are a simple comfort not everyone has access to

When the founders of Bombas, Dave Heath and Randy Goldberg, discovered this problem, they decided to be part of the solution. Using a One Purchased = One Donated business model, Bombas helps provide not only durable, high-quality socks, but also t-shirts and underwear (the top three most requested clothing items in shelters) to those in need nationwide. These meticulously designed donation products include added features intended to offer comfort, quality, and dignity to those experiencing homelessness.

Over the years, Bombas' mission has grown into an enormous movement, with more than 75 million items donated to date and a focus on providing support and visibility to the organizations and people that empower these donations. These are the incredible individuals who are doing the hard work to support those experiencing —or at risk of—homelessness in their communities every day.

Folks like Shirley Raines, creator of Beauty 2 The Streetz. Every Saturday, Raines and her team help those experiencing homelessness on Skid Row in Los Angeles “feel human” with free makeovers, haircuts, food, gift bags and (thanks to Bombas) fresh socks. 500 pairs, every week.

beauty 2 the streetz, skid row laRaines is out there helping people feel their beautiful best

Or Director of Step Forward David Pinson in Cincinnati, Ohio, who offers Bombas donations to those trying to recover from addiction. Launched in 2009, the Step Forward program encourages participation in community walking/running events in order to build confidence and discipline—two major keys to successful rehabilitation. For each marathon, runners are outfitted with special shirts, shoes—and yes, socks—to help make their goals more achievable.

step forward, helping homelessness, homeless non profitsRunning helps instill a sense of confidence and discipline—two key components of successful recovery

Help even reaches the Front Street Clinic of Juneau, Alaska, where Casey Ploof, APRN, and David Norris, RN give out free healthcare to those experiencing homelessness. Because it rains nearly 200 days a year there, it can be very common for people to get trench foot—a very serious condition that, when left untreated, can require amputation. Casey and Dave can help treat trench foot, but without fresh, clean socks, the condition returns. Luckily, their supply is abundant thanks to Bombas. As Casey shared, “people will walk across town and then walk from the valley just to come here to get more socks.”

step forward clinic, step forward alaska, homelessness alaskaWelcome to wild, beautiful and wet Alaska!

The Bombas Impact Report provides details on Bombas’s mission and is full of similar inspiring stories that show how the biggest acts of kindness can come from even the smallest packages. Since its inception in 2013, the company has built a network of over 3,500 Giving Partners in all 50 states, including shelters, nonprofits and community organizations dedicated to supporting our neighbors who are experiencing- or at risk- of homelessness.

Their success has proven that, yes, a simple pair of socks can be a helping hand, an important conversation starter and a link to humanity.

You can also be a part of the solution. Learn more and find the complete Bombas Impact Report by clicking here.

via UNSW

This article originally appeared on 07.10.21


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