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98-year-old Auschwitz survivor is using TikTok to share her story with young people

photo of families in Auschwitz behind barbed wire overlayed with text; Lily Ebert talking to her grandson behind text overlay
Lily Ebert/TikTok

Lily Ebert was sent to Auschwitz-Birkenau when she was 20 and now shares her story on TikTok.

We have reached a critical point in history when the opportunity to hear live, first-hand accounts of the Holocaust are quickly dwindling. Those who survived it—and remember it—are now in their 80s, 90s and 100s, and every year their number grows smaller and smaller. We're also at a point where the reality of the Holocaust has been questioned or outright denied, and, as we near a century since the start of the tragedy, much of the values, ideals, and justice the world fought for are quickly being lost.

If you have the opportunity to sit down and talk to a Holocaust survivor, I highly recommend it. Many won't have that opportunity, however, so the next best thing is bearing witness to these stories as they are shared on video. Not to discount the power of written accounts—those are vital, too—but there's something to the human-to-human connection of hearing a person who lived through it speak about their experiences.

Some Holocaust survivors have traveled to give talks to students in schools. But at least one woman who survived the Auschwitz-Birkenau death camp is using a more modern means of reaching young people with her story: TikTok.

With the help of her great-grandson (one of her 34 great-grandchildren), 98-year-old Lily Ebert shares brief videos on her TikTok channel describing some of what she experienced during the Holocaust and answers questions viewers ask. She currently has 1.7 million followers.

Ebert was 20 years old when her family was taken from their hometown in Hungary to Auschwitz-Birkenau, the largest of the Nazi death camps. Her mother, younger brother and younger sister were immediately taken to the gas chambers and killed. Ebert was sent to work in the camp where she spent four horrifying months.

"People would say 'four months isn't so long,'" she said in one of her videos. "But let me tell you something. Even four minutes was too long."

@lilyebert

Reply to @aimeelilyhoff Not human, just numbers 🥺💔#neverforget #auschwitz #holocaust #learnontiktok #holocaustsurvivor #hell #history #viral #jewish

Ebert bears the tattoo of the number she was given—A-10572—on her forearm. "We were not humans," she said. "We were only a number."

@lilyebert

Reply to @garylee55786 It was a #hell 💔 #learnontiktok #holocaustsurvivor #neverforget #jew #survivor #important #listenandlearn #viral #97yearold #u

Ebert's story is shared in small pieces on TikTok, which can feel somewhat jarring. But TikTok is where the young folks are and reaching them with personal stories like this might be one of the most effective ways of reaching them.

People ask Ebert lots of questions and she answers some of them in videos. For instance, someone asked if she was scared she was going to die. Her thoughtful pause is as telling as her answer.

@lilyebert

Answer to @sofie_slothypanda In #auschwitz you were afraid of #life💔#concentrationcamp #holocaustsurvivor #learnontiktok #askquestions #viral #jew

"In Auschwitz you were not afraid of death," she said. "You were afraid to live."

Some people ask questions that we don't see answered often—details that people might be curious about. In one video, Ebert talked about what it was like to use the bathroom. Toilets were rows of holes in the ground and they were told when they could use them—there was no privacy whatsoever.

She even answered a question about what women did about their periods, explaining that most women didn't have their periods because the physical trauma they endured prevented it.

@lilyebert

Reply to @lesbanon We were so weak 🥺#auschwitz #concentrationcamp #holocaust #history #askquestions #learnontiktok #97yearold #jewtok #shabbat #viral

Someone else asked if there were Nazi women at Auschwitz. Ebert said there were—and that sometimes they were worse than the men.

@lilyebert

Reply to @reubenlouisg They were worse💔#auschwitz #holocaust #history #learnontiktok #askquestions #survivor #blowthisup #shabbat #shabbos #jewish #u

Another person asked if she encountered any Nazi guards who indicated that they didn't want to be torturing and killing people. Her answer was blunt: A person who was kind would not work in Auschwitz.

@lilyebert

Answer to @maeve_5640 No.#auschwitz #hell #learnontiktok #concentrationcamp #blowthisup #viral #holocaust #history #survivor #jew #hungarian #hebrew

Some people might wonder how going through such a heinous experience impacts a person's faith. Her great-grandson asked her if she still believes in God after everything she endured.

@lilyebert

Reply to @adrian_petrov.mcu Humans did it. 💔🥺#believe #askquestions #holocaust #history #God #auschwitz #love #viral #survivor #concentrationcamp #u

"Yes, I do," she said. "Because God didn't do it. So-called humans did."

@lilyebert

Never forget the horrors of the #holocaust 💔🥺 #holocaustsurvivor #concentrationcamp #jewish #jew #neverforget #history #viral #weremember #auschwitz

Ebert has been back to Auschwitz a few times since she was liberated. It's hard enough for anyone to see the enormous piles of shoes from people who were murdered there. It's harder to imagine what it would be like having seen and smelled the smoke coming from the crematorium there, knowing your loved ones were among those killed.

Ebert's "Ask me anything" posts have become a way for young people to interact with that harrowing chapter of human history in a rarely accessible way. She can choose which questions to answer and give some personal insight into what the Holocaust was like.

"What was the first thing you did after liberation?" someone asked.

@lilyebert

A #holocaustsurvivor answers your questions! #askmeanything #learnontiktok #survivor #neverforget #history #oldtok #love #hungarian #forjewpage #fypp

Ebert said she lay down on the floor and fell asleep. Sleep was practically impossible at the camp and she was so tired. Another person asked why she thinks she survived the hell of Auschwitz-Birkenau.

@lilyebert

Reply to @jakie971 To be a witness 💔🥺 #holocaustsurvivor #holocaust #auschwitz #97yearold #history #jewishtiktok #weremember #viral #hungarian #fypp

She said she didn't know. "But maybe it was so that I could tell you and thousands of other people what happened there. To be a witness."

"I was really not sure that I would stay alive," Ebert told CBS News in 2022. "It is a miracle that I am here. But I promised myself, however long I will be alive, and whatever I will do in life, one thing is sure, I will tell my story."

@lilyebert

Have I ever thought about removing my Auschwitz [tattoo] number? #holocaustsurvivor #98yearold #learnontiktok #tattoo #concentrationcamp #strongwoman #neverforget #history #gmb #holocaustmemorialday #jew #goodmorningbritain #jewish

Ebert was also interviewed on Good Morning Britain in 2022, and was asked if she's ever thought about having the tattoo of her number removed. She said she had never thought about it.

"I want to show the world because to see something or to hear about it makes a big difference. And the world should know how deep they cut, how deep humans can go."

In 2023, Ebert celebrated her 100th birthday with her children, grandchildren, great-grandchildren, and of course, all her Internet friends and followers.

Lily Ebert: 100 Years Young 😊💪 Such a special day! 🎂👑❤️ #holocaustsurvivor #100 #greatgrandson #greatgrandma #goodmorningbritain #gmb #itv #richardmadley #ranvirsingh

@lilyebert

Lily Ebert: 100 Years Young 😊💪 Such a special day! 🎂👑❤️ #holocaustsurvivor #100 #greatgrandson #greatgrandma #goodmorningbritain #gmb #itv #richardmadley #ranvirsingh

And it was truly beautiful.

Happy birthday Lily ❤️🎂 100 years old!!! #happybirthday #holocaustsurvivor #100yearold

@lilyebert

Happy birthday Lily ❤️🎂 100 years old!!! #happybirthday #holocaustsurvivor #100yearold

In late 2024, Lily's great-grandson shared a video on her TikTok alerting the world that the family matriarch had passed away on October 9th, just weeks before what would have been her 101st birthday. Though profoundly sad, many in the comments thanked the family for their honesty, vulnerability, and the joy they spread in the shadow of such dark history.


Lily Ebert, 1923-2024 💔 A light that shone so bright has gone dark.

@lilyebert

Lily Ebert, 1923-2024 💔 A light that shone so bright has gone dark.

"She was a beautiful person. Thank you for sharing her with us," one commenter said.

"It has been nothing short of an honour to be a follower of this beautiful woman and her remarkable story. Thank you for your profound strength Lily. May her memory be a blessing🤍," said another.

Thank you, Lily Ebert, for being willing to answer questions to help educate younger generations on the realities of the Holocaust so we can strive to make sure humanity never allows such atrocities to happen again. Her memory most definitely is a blessing.


This article originally appeared three years ago.

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Dogs really do have favorite people, and here's how they decide who it will be

Sometimes their favorite people don't live in their house.

Photo credit: Canva

Dogs really do have favorite people. Here's how they decide

When my sister's dog, Junior, was on this side of the Rainbow Bridge, I was one of his favorite people. This dog would get full body wags every time I came around, and we'd spend most of the day cuddled up with each other. Now my dog, Cocolina, behaves in the same way whenever my sister comes to visit. But what goes into a dog deciding who their favorite person is? Spoiler, it's not always the person they live with.

Like humans, animals have their own personalities. You might rescue a dog thinking it will be the perfect companion, only to have the furry adoptee spend every waking moment following your partner around. You could spend hundreds of dollars on vet checkups, new harnesses, treats, and all the squeaky dog toys you can find, but that still won't be enough to convince a dog to love you. Instead of showering the giver of treats with kisses, they make goo-goo eyes at the pet sitter. It turns out they have their reasons.

dogs; dogs favorite; dog's best friend; pets; people and pets; rescue animals Corgi cuddles spreading joy and smiles!Photo credit: Canva

Since our canine friends can't talk, we have to rely on the experts to explain what the deal is with how dogs pick their favorite human. Carol Erickson, a Pennsylvania SPCA animal advocate, gave a brief interview with CBS News Philadelphia to explain her take on how dogs determine their bestest, most favorite person.

"What it comes down to for all dogs is they decide their very favorite family member by who gives the most consistent, high-quality attention, play, and physical affection: ear rubs, scratches, that sort of thing. Dogs get positive associations from being around people who consistently provide positive experiences, including treats, meals, play that they enjoy, and remember also that early association in those first six months can influence who a dog may like better later on," she tells the outlet.

Rover backs up Erickson's claim that the first six months are crucial in determining who will become the dog's favorite person later in life. The website says, "Many dogs bond hardest to whoever cares for them during their key socialization period, which occurs between birth and six months." However, they later note that dogs can still be socialized appropriately even as adults.

The dog-sitting website also explains that it's not uncommon for people who are not the dog's primary caregiver to be their favorite person. Pointing out that physical affection is vital to dogs, if the mailman gives out head scratches daily but the owner doesn't, the mailman may become the dog's favorite person. While physical affection and treats go a long way for some pooches, those aren't the only things that get puppy eyes melting with love.

dogs; dogs favorite; dog's best friend; pets; people and pets; rescue animals Joyful moments with furry friends! 🐶❤️Photo credit: Canva

"While positive experiences play a big role, a dog’s favorite person isn’t always just the one holding the treat bag. Dogs also respond to emotional connection, tone of voice, and even body language. Their preferences are shaped by a mix of familiarity, trust, and how well a person understands their needs," explains Elle Vet Sciences. They later add, "Dogs also take emotional cues from us. If a person is stressed, loud, or inconsistent, a dog may be less likely to form a deep bond with them. On the other hand, someone who offers reassurance and stability often earns the title of 'favorite' without even realizing it."

In short, if you want to be your dog's bestie, being consistent with affection, actions, and even training and grooming will get you there a lot faster than treats alone. Dogs aren't trying to be persnickety; just like humans, they enjoy being around people who show them that they enjoy their company—and maybe some treats.

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Neuroscientist breaks down why 'normal tween girl drama' deserves a lot more compassion

“Most parents do not realize that between the ages of 8 and 12, your daughter's brain is rewiring itself while her confidence forms."

Photo credit: Canva

The science behind why they need more empathy.

If you’ve ever raised tween girls, been a tween girl yourself, or watched any shows with tweens in them, you’ll be all too familiar with tween girl drama. The eye rolling, the aloofness, the cattiness, the meltdowns…you get the idea.

But what if this newfound attitude isn’t just preteen girls being difficult, but a symptom of chronic dysregulation?

That was the insight recently given by Dr. Chelsey Hauge Zavaleta, who argued that most parents don’t understand that between the ages of 8 and 12, their daughter's brain is “rewiring itself while her confidence forms.”

And because of that, Zavaleta explained, her “nervous system is stuck in a constant state of overwhelm.”

“She will be unable to cooperate, not that she won't, not that she's being bratty, refusing, defiant, rude, she cannot cooperate. Her nervous system is too overwhelmed, and your task is to help her bring it down.”

Zavaleta then listed the five typical “tween drama” behaviors that, when constant and persistent, could be signs of an overworked nervous system.

1. She can't do basic routines that she has always done before.

preteen girls, tween girls, preteens, parenting, parenthood, motherhood, kids, neuroscience, psychology It's not just laziness. Photo credit: Canva

While it might be irksome for parents to now give reminder after reminder for something they know their daughter knows about, Dr. Zavaleta kindly offered the reminder that, “This isn't defiance. She's too dysregulated to access her thinking brain.”

2. She makes nasty comments during family time.

preteen girls, tween girls, preteens, parenting, parenthood, motherhood, kids, neuroscience, psychology It's not just sibling rivalry. Photo credit: Canva

This doesn’t come from meanness so much as deep insecurity.

“She's sitting there in your family, feeling judged and alone. The attention feels overwhelming when her nervous system is already maxed out,” said Zavaleta.

3. She doesn't care about stuff she used to care about.

preteen girls, tween girls, preteens, parenting, parenthood, motherhood, kids, neuroscience, psychology It's not just depression.Photo credit: Canva

Contrary to what it looks like, she actually cares so much that it is unbearable. To cope, she willfully disconnects.

“She cares so much, it hurts, but caring feels dangerous right now. Disconnection is protection when everything feels too intense.”

4. She is constantly picking fights with her siblings.

preteen girls, tween girls, preteens, parenting, parenthood, motherhood, kids, neuroscience, psychology It's not just an attitude. Photo credit: Canva

“She's looking for connection, but she only knows how to get attention through conflict. Her nervous system is seeking regulation through the friction created by drama,” Zavaleta explained.

5. She cries over “nothing.”

preteen girls, tween girls, preteens, parenting, parenthood, motherhood, kids, neuroscience, psychology It's not just a meltdown. Photo credit: Canva

“Spilled milk becomes a huge meltdown,” said Zavaleta, painting a picture.

Thing is, “when your system is already flooded, the smallest thing is gonna tip you right over,” she added.

“Those tears aren't about the milk, they're about everything else.”

When put through this lens, it’s easy to see how “these are not behavior problems to be fixed with consequences,” as Zavaleta put it. Rather, they're “regulation problems” that need co-regulation support from the parents. After all, at this age kids are still hardwired to their parents' nervous systems, making it all the more imperative for parents to model healthy regulation practices.

“When you stay calm and grounded, she can access that state as well. When you are also dysregulated because parenting a dysregulated tween is hard, you're both stuck in survival mode.”

@drchelsey_parenting Join me for my LIVE webinar DECODING TWEEN GIRLS Comment TWEENGIRL for the registration link- and clear your calendars- being there live is the best thing!
♬ original sound - Dr. Chelsey HaugeZavaleta, PhD

Bottom line: when you think about all the inner “construction” going on, in addition to external factors—more and more school responsibilities, increasingly complicated friendships, a transforming body, etc.—there’s no doubt that young girls didn’t suddenly become ornery for no reason.

When parents feel that a boundary needs to be made, child counselor Katie Lear suggests offering a chance for “do-overs” when they catch an attitude. This helps preteens become more aware and gives them another opportunity to communicate calmly. Alternatively, parents can offer “natural consequences” that help preteens better understand cause and effect. She uses the example of not being available to drive her to a friend if you’re spending time doing the chores she fails to do.

None of this makes parenting during the tween phase any easier, per se. However, it does hopefully provide insight and tools that can elicit compassion, strengthen relationships, and offer an opportunity for both parents and children to emerge from a notoriously tumultuous chapter a little more grounded.

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6th grader's science fair project answers age-old question: 'Do cat buttholes touch everything?'

You know you've been wondering.

Photo courtesy of Kerry Hyde
Do cat buttholes touch every surface they sit on? Science answers.

Cat owners are a special breed of people. Sometimes, in dealing with feline friends, they have unique questions that even Google doesn't always have the answer to. This is probably the sole reason cat forums exist, but one kid who needed a 6th grade science project decided to skip the cat forums for answers and instead use the scientific method. Kaeden Henry, a sixth grader living in Florida, bravely pondered a question few (if any one) has been brave enough to ask: do cat buttholes touch every surface they sit on?

Since cats do whatever the heck they want, training them not to jump on kitchen counters is a feat even Hercules struggles to complete. These fierce felines don't care if you're cooking dinner or trying to get comfy in bed. If they want to sit somewhere, they're going to do it. The thought of cat butts on that expensive Serta pillow designed to feel like you're sleeping on a cloud can gross people out, but thanks to Kaeden, you no longer have to wonder if the butthole itself is also making contact.

cats; pets; cat lovers; cat parents; cats on counters; cat butts, pets, animals, humor, funny, science The scientific method as it was meant to be used.Courtesy of Kerry Hyde

The curious sixth grader is homeschooled and well-versed in the scientific method thanks to her mother's PhD in animal behavior with a concentration in feline behavior. And, since they own cats, the science experiment was pretty straightforward (and directly impactful).

To complete the experiment, Henry and his mom, Kerry Hyde, bought non-toxic lipstick and applied it to each of their cat's anuses. Then, the cats were given commands. (Commands... hilarious, right?)

cats; pets; cat lovers; cat parents; cats on counters; cat butts, pets, animals, humor, funny, science What are you planning on doing with that lipstick?Courtesy of Kerry Hyde

"Non-toxic lipstick was applied to their bum-bums, they were then given a series of commands (sit, wait, lie down, and jump up. Side note: Both cats have been trained since kittenhood with a variety of commands, they also know how to high-five, spin around, and speak.), they were compensated with lots of praise, pets, and their favorite treats, and the lipstick was removed with a baby wipe once we collected our data in just under 10 minutes," Hyde wrote in a Facebook post.

The results? Turns out that, no, cat buttholes do not touch every surface cats sit on.

Now, let's all take a collective sigh of relief while we go over the details. Kaeden's experiment covered long-haired, short-haired, and medium-haired cats (if your cat is hairless, you better stock up on Clorox wipes just in case).



"His results and general findings: Long and medium haired cat’s buttholes made NO contact with soft or hard surfaces at all. Short haired cats made NO contact on hard surfaces. But we did see evidence of a slight smear on the soft bedding surface. Conclusion, if you have a short haired cat and they may be lying on a pile of laundry, an unmade bed, or other soft uneven surface, then their butthole MAY touch those surfaces!" Hyde shares.

Now every curious cat owner can rest easy knowing that as long as their cat has hair, their bare bottom balloon knot is not touching the majority of surfaces in their home.

cats; pets; cat lovers; cat parents; cats on counters; cat butts, pets, animals, humor, funny, science You want me to sit on that?Courtesy of Kerry Hyde

The amusing experiment caught the Internet's attention. People laughed and commented, with one person writing, "This is probably the most useful information I’ve learned from a science fair project."

"Good to know!...I can now eat my sandwich left on the counter with confidence!" another writes.

cats; pets; cat lovers; cat parents; cats on counters; cat butts, pets, animals, humor, funny, science High five for an A+! Courtesy of Kerry Hyde

"A+++!!! Whew!! I am very grateful for your sciencing on this subject. My fears from walking in on my cat sitting on my laptop keyboard and subsequently being grossed out and cleaning furiously in a hyper-ocd manner have been somewhat allayed and now maybe I won’t have to use QUIIITE so many wipes." someone chimes in.

"Finally.. Someone answers the important questions!!"

The best part of the story? Kaeden's mom has a Ph.D. in animal behavior, specializing in feline behavior, and even she learned something new. The power of science!

This article originally appeared in April. It has been updated.

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A parent saw their kids bullying someone. How they handled it has other parents cheering.

Parenting done right.

Photo credit: Canva

What do you do when your kid is being the bully?

Many of us may assume that kids who bully other kids don't have parents teaching them right from wrong, but that's not always true. While a dysfunctional home or lack of parental guidance can lead to bad behavior, even kids from solid families with attentive, conscientious parents can have lapses in judgment. Good kids can fall to peer pressure or "try on" certain behaviors that go against what their parents teach them.

Case in point: a parent who posted a message to a local message board explaining how they handled seeing their kids bullying another kid.

facebook, post, bullies, kids, parenting A parent shared this message on a local Facebook group.Via MothersMiIk/Reddit

The message was addressed to the parents of a junior high school student who might have come home "very distraught." She explained that he seemed to have some sort of hearing device and described where he was walking with his class.

"Just know that I am so sorry and that I see you," she wrote. "I witnessed my kids picking on your kid. I could see how angry he was. I stepped out of my vehicle as soon as I realized what was going on, and I intervened and I had his back. I have talked to my children. It won't happen again. Please tell your kiddo that we are so sorry, and expect an apology from my junior high-aged child tomorrow at school. We are not raising bullies here."

The screenshot shared on Reddit received praise from other parents in the comments:

"And that's the way you do it!! Good on you for teaching your child what is acceptable and what is not."

"Wish more parents were like this instead of making excuses or pretending their kids are angels. Takes guts to step up when you see your own child being awful."

good job, parents, mom, dad, parenting parenting moms GIF by Cat & Nat Giphy

"It’s rare but beautiful when parenting looks like accountability in real time."

"Parenting done right."

"Wife and I have told both our kids that if they are being bullied, then they have carte blanche to defend themselves, regardless of how the school wishes to punish them. However, if we learn THEY are being the bullies, then whatever punishment the school provides will be NOTHING on what they get at here at home."

"I’m so glad there’s parents like this. My 2 year old is deaf with a hearing device and facial differences caused by his genetic syndrome. I dread him going to school and getting bullied but this gives me hope that there is still good parents raising kids out there!"

parenting, raising good kids, bullies, bullying, kindness Strive to raise kind kids. Photo credit: Canva

There are several steps parents can take to prevent their children from becoming bullies, including teaching them the importance of kindness, fostering empathy, and modeling respectful treatment of others. However, proactive parenting doesn't always take hold, so parents must also be prepared for what to do if their child behaves in a manner that contradicts the way they've been taught.

Considering the fact that this parent didn't know who the picked-on kid or his parents were, this message being put out in a community forum was perfect. It included many great elements on how to handle this kind of situation: The parent took immediate action when they noticed what was happening. They supported the child who was being picked on. They acknowledged the emotion the child was feeling and recognized that the child's parents would be upset, too. They didn't defend their children, but explained what they were doing about what had happened and how they were ensuring it wouldn't happen again. And they apologized and ensured that appropriate in-person apologies would also take place.

Parenting isn't easy, and our kids can surprise us in both delightful and disturbing ways. It takes years of proactive and reactive effort to mold small humans into conscientious, contributing adults. None of us do it all perfectly, which is why it's nice to see a good, solid parenting example we can all learn something from.

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They thought their son lived a lonely life. But his funeral drew friends from around the globe.

Mats Steen touched far more people than his parents knew.

Netflix/YouTube

Mats Steen led a richer, fuller life than anyone new.

Tragically, Mats Steen was only 25 years old when he passed away, his body succumbing to the genetic disease that had slowly taken his mobility since childhood. He'd lived in a wheelchair since his early teens, and by his 20s, his physical abilities had deteriorated to the point of only being able to move his fingers. He could push buttons and use a mouse, and he spent nearly all of his waking hours playing video games in his parents' basement.

His family loved him and cared for him through it all, giving him as much of a normal life as they could. But they also lamented everything they knew he'd missed out on. "Our deepest sorrow lay in the fact that he would never experience friendships, love, or to make a difference in people's lives," Mats' father shares.

Mats left behind the password to a blog he kept. Not knowing if anyone would actually read it, his parents published the news of Mats' passing in a blog post, adding their email address in case anyone wanted to reach out.

Much to their surprise, messages began pouring in from around the world—not just with condolences, but with heartfelt stories from people who called Mats their friend.

The Steens soon discovered that their son had lived a much fuller life than they'd ever imagined—one that included all the things they always wished for him.

As his online life was revealed, the family learned that Mats began his days with a routine 30-minute sprint through the forest. He frequented cafes and pubs, chatting with strangers and flirting with women. He sat by campfires having heart-to-heart conversations. He made friends and enemies. He fought heroic battles. He supported people in times of need. He gave advice that people took. He experienced his first kiss.

And he did it all as "Ibelin," his handsome, muscular avatar in the online game World of Warcraft.

- YouTube youtu.be

Mats' life is showcased in the documentary The Remarkable Life of Ibelin, in which his parents share the story of how they discovered their son's group of friends they didn't know he had.

People who've never played an open world roleplay game like World of Warcraft may wonder how real community can be built through it, but Mats' story proves it's possible. The friends he made through the game have shared the real influence he'd had on their real lives, from helping them with problems they were facing to empowering them to make positive changes in their relationships.

Though he never met them face-to-face, Mats' online friends say he made a significant impact on them.

A young woman Ibelin had connected with as a teenager—the one with whom he'd shared that first virtual kiss—shared that her parents had taken away her computer when they feared gaming was interfering with her studies. When she logged on at a local library, Mats gave her a letter he had written to give to her parents, encouraging them to talk with her about her gaming hobby and to work out a solution together that didn't require her to give it up completely. She printed it and gave it to them. Miraculously, it worked.

Another woman had been having a hard time connecting with her autistic son as a young adult. When she talked with Ibelin about her struggles, he suggested that she and her son start gaming together and connect in that way first. Eventually, that connection via the virtual world led to warmer in-person interactions between them—and a life-changing shift in their relationship.

"I don't think he was aware of the impact that he had done to a lot of people," the mother shared.

Mats interacted with the same online friends as Ibelin for years, going through the kinds of ups and downs all friendships experience. He kept his physical condition a secret until close to the end of his life, when he finally opened up to another player who convinced him to share his reality with the others. Some traveled from other countries to attend his funeral, with one of them speaking on the group's behalf and a few of them serving as pallbearers. Those who knew Ibelin also held a memorial in-game at his virtual gravesite—a tradition that has spread beyond just his own guild.

Typically, we think of someone escaping the real world and spending hours a day playing video games as unhealthy, but for Mats, it was a lifeline. As Ibelin, Mats was able to have a level of independence and a rich social life that simply wasn't possible for him in the offline world—an uniquely modern phenomenon that technology and human creativity have made possible.

Mats' impact on his online community was real, and 10 years after his passing his impact is spreading even further.

Duchenne muscular dystrophy (DMD), the genetic disease that Mats lived with and ultimately died from, affects 300,000 boys worldwide. It only affects males and it has no cure. But CureDuchenne, a global nonprofit dedicated to funding and finding a cure, partnered with video game company Blizzard Entertainment's World of Warcraft in Mats' honor from the end of 2024 until January 7, 2025. During that window, World of Warcraft players could purchase a limited-edition pet fox named Reven ("fox" in Norwegian). The Reven Pack, which includes a transmog backpack and Reven’s Comfy Carrier, costs $20, with 100% of the purchase price being donated to CureDuchenne.

The Reven Pack on World of Warcraft—100% of purchase cost goes to the CureDuchenne foundation. World of Warcraft/CureDuchenne

“Mats Steen lived a life in World of Warcraft that he couldn’t in the real world as he fought Duchenne muscular dystrophy alongside his incredible family, who I’m proud to have met and fallen in love with,” said Holly Longdale, executive producer of World of Warcraft. “Working with CureDuchenne for our Charity Pet Program, in honor of Mats’ memory, allows us to harness the power of our phenomenal global community to bring meaningful impact to so many lives.”

In February 2025, CureDuchenne announced that The Reven Pack raised over two million dollars in support. Later in the month, Debra and Hawken Miller of Cure Duchenne spoke with ViceVice and shared how The Reven Pack helped raise valuable awareness about Duchenne in addition to funds. For those interested in updates, the site keeps donors and supporters current on all developments in Duchenne research news.

Mats life was truly impactful in many ways and to many people. His love, kindness, and friendship touched lives and his legacy continues to help those struggling with this rare disease. According to the site, since the inception of CureDuchenne, life expectancy for those with the disease has increased by a decade and over fifty million dollars have been raised for research, education, and care.

You can learn more about Mats' story in the award-winning documentary, The Remarkable Life of Ibelin on Netflix.

This article originally appeared last year. It has been updated.

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