Jimmy has built a wonderful life, but his diagnosis presented some unexpected challenges.
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Muscular Dystrophy Association

Growing up, Jimmy Valdes' parents raised him to focus on all the things he could do, not the things he couldn’t.

Jimmy was diagnosed with spinal muscular atrophy (SMA) in 1971 when he was only 4 years old. SMA is a degenerative spinal disease that causes weakness of the voluntary muscles — often those in the shoulders, thighs, hips, and back. People who have it usually need assistance to complete physical tasks.


Check out Jimmy's story here, or read more below:

As Cuban immigrants, Jimmy's parents were driven and determined to give their family the most normal life possible. They took him on family vacations. He played catch with his dad. He went to school and went on dates and read comic books.

His parents made it clear to him that he would always need help but that nothing was impossible. And he believed them. Jimmy told Upworthy, "If not for the decisions they made back then, my life wouldn't have turned out the way it did. And it's still a work in progress, it's every day, every week, every month."

Jimmy can't do everything, though, and needs caretakers to assist him through his daily routine.

He needs help completing all physical activities, from hygiene to meal prep to transportation. This is a reality that he's dealt with for most of his life, and he hasn't let it limit him.

There are systems and programs in place to help people like Jimmy who live with disabilities. Unfortunately, those supports sometimes fall short. Jimmy’s reality is proof of that.

All images via Muscular Dystrophy Association/YouTube.

You see, in spite of Jimmy’s severe disability, he does not qualify for disability benefits.

He's the breadwinner in his family — he has worked for CBS for over 20 years — and because he earns an income that exceeds the amount allowed, Jimmy does not qualify for disability benefits through the Social Security Administration that would help him pay for the care and services necessary to live his everyday life.

Almost all of his care he pays for out-of-pocket.

And the costs are astronomical. He said he spends hundreds per week on caretakers. He even quipped that he's been audited by the IRS a number of times because they couldn't believe that a single man had such exorbitant expenses.

As he put it, "it costs more for me to live life."

The Social Security Administration makes it clear that it's possible to work and receive benefits, so long as your earnings aren't "substantial." What does that mean? For 2016, the SSA site says that per month, "we consider earnings over $1,130 ($1,820 if you're blind) to be substantial."

So, you can be making a barely livable wage, especially in a city as notoriously expensive as New York City and not qualify. If you make more than the figures mentioned above, your care isn't covered.

This is Jimmy's dilemma, and he’s not the only one.

The Muscular Dystrophy Association shared a post on Facebook asking for comments and insight regarding efforts to work while dealing with a muscle-debilitating disease. The responses are telling.

One person mentions that, like Jimmy, he doesn’t meet the stringent income requirements to receive benefits, but that "as long as I can work that is a far more fulfilling life then having to watch every cent to be sure I'm poor enough." Another person mentions that she is "afraid to get any kind of raise or promotion due to income caps."

These are men and women who want nothing more than to live life on their terms but who are, in effect, limited by a policy that is meant to serve them.

The very system that was built to support them has let them down.

As hard as it may be to pay for his care and continue supporting his family, Jimmy isn't letting it prevent him from living the life he dreamed of.

He continues to work because he genuinely likes what he does. He's built a career and has a network of people who support him. He met and married the love of his life and is devoted to her and her family, all of whom remain a source of endless inspiration for him. He goes to concerts and games and makes every effort to enjoy the life he's worked so hard to build.

In addition to working hard toward his own self-sufficiency, Jimmy is focused on helping others in a similar situation have the opportunity to live life on their terms.

He wants to use his voice to bring awareness to the issues that people who have disabilities face and to help find solutions. He wants everyone to have the opportunity to live life their way, much as he has. And he wants the systems that are built to support people like himself to not be the very thing that limits them.

He's not yet sure where to start, but he's determined.


People with disabilities can and do live meaningful and contributing lives, and we can work together to help ensure that the systems intended to lift up individuals with disabilities do not hold them back.

MDA is proud to be part of the collective effort to break down barriers to meaningful employment for those living with disabilities, including looking at ways to help individuals work while keeping benefits like personal care in place. Get involved today by joining MDA’s advocacy efforts, contributing to help individuals like Jimmy live unlimited, or sharing your story about how you balance employment and personal care needs by emailing advocacy@mdausa.org.

Courtesy of Macy's

Brantley and his snowman

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"Would you like to build a snowman?" If you asked five-year-old Brantley from Texas this question, the answer would be a resounding "Yes!" While it may sound like a simple dream, since Texas doesn't usually see much snow, it seemed like a lofty one for him, even more so because Brantley has a congenital heart disease.

On Dec. 11, 2019, however, the real Macy's Santa and his two elves teamed up with Make-A-Wish to surprise Brantley and his family on his way to Colorado where there was plenty of snow for him to build his very own snowman, fulfilling his wish as part of the Macy's Believe campaign. After a joy-filled plane ride where every passenger got gift bags from Macy's, the family arrived in Breckenridge, Colorado where Santa and his elves helped Brantley build a snowman.

Brantley, Brantley's mom, and Santa marveling at their snowmanAll photos courtesy of Macy's

Brantley, who according to his mom had never actually seen snow, was blown away by the experience.

"Well, I had to build a snowman because snowmen are my favorite," Brantley said in an interview with Summit Daily. "All of it was my favorite part."

This is just one example of the more than 330,000 wishes the nonprofit Make-A-Wish have fulfilled to bring joy to children fighting critical illnesses since its founding 40 years ago. Even though many of the children that Make-A-Wish grants wishes for manage or overcome their illnesses, they often face months, if not years of doctor's visits, hospital stays and uncomfortable treatments. The nonprofit helps these children and their families replace fear with confidence, sadness with joy and anxiety with hope.

It's hardly an outlandish notion — research shows that a wish come true can help increase these children's resiliency and improve their quality of life. Brantley is a prime example.

"This couldn't have come at a better time because we see all the hardships that we went through last year," Brantley's mom Brandi told Summit Daily.

Brantley playing with snowballs

Now more than ever, kids with critical illnesses need hope. Since they're particularly vulnerable to disease, they and their families have had to isolate even more during the pandemic and avoid the people they love most and many of the activities that recharge them. That's why Make-A-Wish is doing everything it can to fulfill wishes in spite of the unprecedented obstacles.

That's where you come in. Macy's has raised over $132 million for Make-A-Wish, and helped grant more than 15,500 wishes since their partnership began in 2003, but they couldn't have done that without the support of everyday people. The crux of that support comes from Macy's Believe Campaign — the longstanding holiday fundraising effort where for every letter to Santa that's written online at Macys.com or dropped off safely at the red Believe mailbox at their stores, Macy's will donate $1 to Make-A-Wish, up to $1 million. New this year, National Believe Day will be expanded to National Believe Week and will provide customers the opportunity to double their donations ($2 per letter, up to an additional $1 million) for a full week from Sunday, Nov. 29 through Saturday, Dec. 5.

There are more ways to support Make-A-Wish besides letter-writing too. If you purchase a $4 Believe bracelet, $2 of each bracelet will be donated to Make-A-Wish through Dec. 31. And for families who are all about the holiday PJs, on Giving Tuesday (Dec. 1), 20 percent of the purchase price of select family pajamas will benefit Make-A-Wish.

Elizabeth living out her wish of being a fashion designer

Additionally, this year's campaign features 6-year-old Elizabeth, a Make-A-Wish child diagnosed with leukemia, whose wish to design a dress recently came true. Thanks to the style experts at Macy's Fashion Office and I.N.C. International Concepts, only at Macy's, Elizabeth had the opportunity to design a colorful floral maxi dress. Elizabeth's exclusive design is now available online at Macys.com and in select Macy's stores. In the spirit of giving back this holiday season, 20 percent of the purchase price of Elizabeth's dress (through Dec. 31) will benefit Make-A-Wish.You can also donate directly to Make-A-Wish via Macy's website.

This holiday season may be a tough one this year, but you can bring joy to children fighting critical illnesses by delivering hope for their wishes to come true.

Usually when we share a story of a couple having been married for nearly five decades, it's a sweet story of lasting love. Usually when we share a story of a long-time married couple dying within minutes of each other, it's a touching story of not wanting to part from one another at the end of their lives.

The story of Patricia and Leslie "LD" McWaters dying together might have both of those elements, but it is also tragic because they died of a preventable disease in a pandemic that hasn't been handled well. The Michigan couple, who had been married for 47 years, both died of COVID-19 complications on November 24th. Since they died less than a minute apart, their deaths were recorded with the exact same time—4:23pm.

Patricia, who was 78 at her passing, had made her career as a nurse. LD, who would have turned 76 next month, had been a truck driver. Patricia was "no nonsense" while LD was "fun-loving," and the couple did almost everything together, according to their joint obituary.

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Courtesy of Macy's

Brantley and his snowman

True

"Would you like to build a snowman?" If you asked five-year-old Brantley from Texas this question, the answer would be a resounding "Yes!" While it may sound like a simple dream, since Texas doesn't usually see much snow, it seemed like a lofty one for him, even more so because Brantley has a congenital heart disease.

On Dec. 11, 2019, however, the real Macy's Santa and his two elves teamed up with Make-A-Wish to surprise Brantley and his family on his way to Colorado where there was plenty of snow for him to build his very own snowman, fulfilling his wish as part of the Macy's Believe campaign. After a joy-filled plane ride where every passenger got gift bags from Macy's, the family arrived in Breckenridge, Colorado where Santa and his elves helped Brantley build a snowman.

Brantley, Brantley's mom, and Santa marveling at their snowmanAll photos courtesy of Macy's

Brantley, who according to his mom had never actually seen snow, was blown away by the experience.

"Well, I had to build a snowman because snowmen are my favorite," Brantley said in an interview with Summit Daily. "All of it was my favorite part."

This is just one example of the more than 330,000 wishes the nonprofit Make-A-Wish have fulfilled to bring joy to children fighting critical illnesses since its founding 40 years ago. Even though many of the children that Make-A-Wish grants wishes for manage or overcome their illnesses, they often face months, if not years of doctor's visits, hospital stays and uncomfortable treatments. The nonprofit helps these children and their families replace fear with confidence, sadness with joy and anxiety with hope.

It's hardly an outlandish notion — research shows that a wish come true can help increase these children's resiliency and improve their quality of life. Brantley is a prime example.

"This couldn't have come at a better time because we see all the hardships that we went through last year," Brantley's mom Brandi told Summit Daily.

Brantley playing with snowballs

Now more than ever, kids with critical illnesses need hope. Since they're particularly vulnerable to disease, they and their families have had to isolate even more during the pandemic and avoid the people they love most and many of the activities that recharge them. That's why Make-A-Wish is doing everything it can to fulfill wishes in spite of the unprecedented obstacles.

That's where you come in. Macy's has raised over $132 million for Make-A-Wish, and helped grant more than 15,500 wishes since their partnership began in 2003, but they couldn't have done that without the support of everyday people. The crux of that support comes from Macy's Believe Campaign — the longstanding holiday fundraising effort where for every letter to Santa that's written online at Macys.com or dropped off safely at the red Believe mailbox at their stores, Macy's will donate $1 to Make-A-Wish, up to $1 million. New this year, National Believe Day will be expanded to National Believe Week and will provide customers the opportunity to double their donations ($2 per letter, up to an additional $1 million) for a full week from Sunday, Nov. 29 through Saturday, Dec. 5.

There are more ways to support Make-A-Wish besides letter-writing too. If you purchase a $4 Believe bracelet, $2 of each bracelet will be donated to Make-A-Wish through Dec. 31. And for families who are all about the holiday PJs, on Giving Tuesday (Dec. 1), 20 percent of the purchase price of select family pajamas will benefit Make-A-Wish.

Elizabeth living out her wish of being a fashion designer

Additionally, this year's campaign features 6-year-old Elizabeth, a Make-A-Wish child diagnosed with leukemia, whose wish to design a dress recently came true. Thanks to the style experts at Macy's Fashion Office and I.N.C. International Concepts, only at Macy's, Elizabeth had the opportunity to design a colorful floral maxi dress. Elizabeth's exclusive design is now available online at Macys.com and in select Macy's stores. In the spirit of giving back this holiday season, 20 percent of the purchase price of Elizabeth's dress (through Dec. 31) will benefit Make-A-Wish.You can also donate directly to Make-A-Wish via Macy's website.

This holiday season may be a tough one this year, but you can bring joy to children fighting critical illnesses by delivering hope for their wishes to come true.

via Twins Trust / Twitter

Twins born with separate fathers are rare in the human population. Although there isn't much known about heteropaternal superfecundation — as it's known in the scientific community — a study published in The Guardian, says about one in every 400 sets of fraternal twins has different fathers.

Simon and Graeme Berney-Edwards, a gay married couple, from London, England both wanted to be the biological father of their first child.

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via Elliot Page / Instagram

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The actor currently stars in Netflix's "The Umbrella Academy" and has acted in films such as "Juno," "Inception," and the "X-Men" franchise.

Page made the announcement on social media where he celebrated the joy of coming out while taking the opportunity to discuss the issues faced by the transgender community.

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