+
More

Here's what life is like with an 'invisible disease.' It's kind of intense.

We don't always think of it as life-threatening, but it is.

That's me with my little brother in 1990. I was 10 years old.

I know what you're thinking. I had style written all over me!


If you can tear your eyes away from the photo for a few minutes — which I understand is difficult because my bad perm and glasses that are half the size of my face are extremely engaging — I'll tell you why this picture is significant.

This was taken one year after I was diagnosed with type 1 diabetes.

We were on a camping trip in the middle of nowhere, a three-hour drive from the nearest town and emergency services, reachable only via a narrow dirt mountain road.

My parents debated whether it was safe for us to take such a trip so soon after learning that my life wouldn't be "normal" again. Because for type 1 diabetics, particularly children, not being able to call 911 can be deadly.

Type 1 diabetes is a disease in which the pancreas, which produces the hormone insulin that is necessary for converting the glucose in food into energy, quits working. It's an autoimmune disease, which means that a type 1 diabetic's body pretty much kills its own pancreas. The cause is unknown, and there's no cure.

The way a type 1 diabetic stays alive is through multiple daily insulin injections (or an insulin pump), blood glucose monitoring, and a lot of hoping for the best because often, no matter how "right" we do things, stuff still goes wrong.

I'd spent 10 days in the hospital after I was first diagnosed, learning how to stay alive. And then my family and I spent the next year learning how to live while I stayed alive.

Living and staying alive are two different things.

One year later, with the encouragement of my doctors, my parents planned carefully and we went on our trip. Very. Big. Deal.

So why am I sharing this embarrassing photo with you? Because there are a few things I'd like you to know.

Type 1 diabetes isn't all that common.

Because it has a nearly identical name to type 2 diabetes, it's easy to confuse the two and conclude that a lot of people have it. But in reality, about 1.25 million Americans live with type 1 diabetes (versus 29 million with type 2).

Type 1 diabetes never gets better, never goes away, and, so far, cannot be "cured."

It's a disease that requires managing 24 hours a day. While I know that I speak for every single type 1 diabetic when I say we're incredibly grateful for insulin — because we'd literally drop dead without it — it's not a cure.

It doesn't prevent the daily dangers of high and low blood sugars, and it doesn't prevent the long-term complications that so many type 1s face.

Being alive is awesome, though! Seriously. But it's not always easy.

I have always had access to the medications, supplies, and good doctors that are necessary to help keep me alive. That's what made my childhood trip possible, and it's a benefit I don't take for granted.

With new developments in technology like continuous glucose monitoring, children growing up today have even more options and medical support than I did. That's the good news. But it's still pretty hard. Don't just take my word for it.

This is the New York Times' day-in-the-life look at a type 1 diabetic teenager named Grace and her mom.

Grace's mom sums up the struggle, effort and energy of her daughter's daily life pretty simply:

"It's kind of overwhelming to say it, but that's the way she lives."

While some of the medical technology has gotten a little better since I was diagnosed 25 years ago, the truth is that not much has changed. Grace's life is almost exactly what my childhood and my parents' lives were like — minus the dog. (If you do nothing else, watch the video for her superhero dog. He's pretty amazing.)


Intense, right? People like Grace and I look pretty "regular" on the outside. But managing type 1 diabetes is a lot of work.

Know anyone who lives with an "invisible disease"? It's possible that you do and don't even know it! Share this video to let them and the world know that you realize how hard they are working — just to stay alive.

Internet

Relationship expert tells people to never get married unless you're willing to do 3 things

"If you and your partner (both) are unable or unwilling to do these 3 things consistently forever, you won’t make it."

Relationship expert gives people advice on getting married.

Being in a relationship can be difficult at times. Learning someone else's quirks, boundaries, and deep views on the world can be eye-opening and hard. But usually, the happy chemicals released in our brain when we love someone can cause us to overlook things in order to keep the peace.

Jayson Gaddis, a relationship expert, took to Twitter to rip off people's rose-colored glasses and tell them to forego marriage. Honestly, with the divorce rate in this country being as high as it is, he probably could've stopped his tweet right there. Don't get married, the end. Many people would've probably related and not questioned the bold statement, but thankfully he followed up with three things you must be willing to do before going to the chapel.

Before going into his reasons for why he tells people not to get married, Gaddis explained that he is a person that "LOVEs being married." I mean, it would probably make him a pretty weird relationship expert if he hated relationships, so it's probably a good thing he enjoys being married. Surely his spouse appreciates his stance as well.

Keep ReadingShow less

Tater Tots, fresh out of the oven.

It’s hard to imagine growing up in America without Tater Tots. They are one of the most popular kiddie foods, right up there with chicken nuggets, peanut butter and jelly sandwiches and macaroni and cheese. The funny thing is the only reason Tater Tots exist is that their creators needed something to do with leftover food waste.

The Tater Tot is the brainchild of two Mormon brothers, F. Nephi and Golden Grigg, who started a factory on the Oregon-Idaho border that they appropriately named Ore-Ida. The brothers started the factory in 1951 after being convinced that frozen foods were the next big thing.

According to Eater, between 1945 and 1946, Americans bought 800 million pounds of frozen food.

Keep ReadingShow less
Pop Culture

10 years ago, a 'Stairway to Heaven' performance brought Led Zeppelin's surviving members to tears

Heart, John Bonham's son and a full choir came together for the epic tribute.

Led Zeppelin got to see their iconic hit performed for them.

When Billboard and Rolling Stone pull together their "Best Songs of All Time" lists, there are some tunes you know for sure will be included. Led Zeppelin's "Stairway to Heaven" is most definitely one of them.

It has everything—the beauty of a ballad, the grunginess of a rock song, the simple solo voice, and the band in full force. "Stairway to Heaven" takes us on a musical journey, and even people who aren't necessarily giant Led Zeppelin or classic rock fans can't help but nod or sing along to it.

Of course, it's also been so ubiquitous (or overplayed, as some would claim) to become a meme among musicians. Signs saying "No Stairway to Heaven" in guitar stores point to how sick of the song many guitarists get, and when Oregon radio station KBOO told listeners they would never play the song again if someone pledged $10,000, Led Zepelin singer Robert Plant himself called in and gave the donation.

Keep ReadingShow less
Family

Developmental scientist shared her 'anti-parenting advice' and parents are relieved

In a viral Twitter thread, Dorsa Amir addresses the "extreme pressure put on parents in the West."

Photo by kabita Darlami on Unsplash, @DorsaAmir/Twitter

Parents, maybe give yourselves a break

For every grain of sand on all the world’s beaches, for every star in the known universe…there is a piece well intentioned, but possibly stress-inducing parenting advice.

Whether it’s the astounding amount of hidden dangers that parents might be unwittingly exposing their child to, or the myriad ways they might be missing on maximizing every moment of interaction, the internet is teeming with so much information that it can be impossible for parents to feel like they’re doing enough to protect and nurture their kids.

However, developmental scientist and mom Dorsa Amir has a bit of “anti-parenting advice” that help parents worry a little less about how they’re measuring up.

First and foremost—not everything has to be a learning opportunity. Honestly, this wisdom also applies to adults who feel the need to be consistently productive…raises hand while doing taxes and listening to a podcast on personal development
Keep ReadingShow less

A guy with road rage screaming out of his car.

A psychologist who’s an expert in narcissism has released a telling video that reveals one of the red flags of the disorder, being an erratic driver.

"Most people, when they tell the story backwards of a narcissistic relationship, are able to see the red flags very clearly,” Dr. Ramani said in her video. “However, seeing them forwards isn't hard. But if you see them too late, it means you've already been through the narcissistic relationship, you're devastated and have likely wasted a lot of time."

Dr. Ramani Durvasula is a licensed clinical psychologist in Los Angeles, Professor Emerita of Psychology at California State University and author of several books, including “Should I Stay or Should I Go: Surviving A Relationship with a Narcissist.”

Keep ReadingShow less
www.youtube.com

Man hailed 'Highway Hero' for running across four lanes of traffic

Holy cow, Bat Man! You're always supposed to be aware of other vehicles when you're driving but what do you do when you notice someone has lost consciousness while speeding down the highway?

It's a scenario that no one wants to see play out, but for Adolfo Molina, the scenario became reality and he didn't hesitate to spring into action. Molina was driving down the highway when he spotted a woman in a blue car who lost consciousness as her car careened down the shoulder of the highway. The concerned driver quickly pulled over in order to attempt to rescue the woman.

But there was a problem, he had to cross four lanes of traffic on the highway just to make it to the woman's still moving car. That obstacle didn't stop him. Molina sprinted across the highway, crossing right in front of a black pick up truck before running at full speed to attempt to open the woman's door and stop her car.

Keep ReadingShow less