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Woman shares a heart-wrenchingly beautiful exchange with her dad who has dementia

The love is there, even if he doesn't remember why.

Woman shares a heart-wrenchingly beautiful exchange with her dad who has dementia

It's helpful to see examples of loving a family member through dementia.

Any family who has had a loved one suffer from dementia knows how incredibly difficult it can be. The CDC estimates that 5.8 million people in the United States have Alzheimer's disease and related dementias, which means many millions more are serving as caregivers for family members with dementia.

Alzheimer's is the most common cause of dementia, but there are others. For instance, alcohol abuse can cause dementia, which is what happened to the father of a woman named Bailey who has been sharing their mutual journey on TikTok.

Bailey's dad, Scott, was diagnosed with Wernicke-Korsakoff syndrome (caused by vitamin B1 deficiency due to alcohol abuse) earlier this year, and he has been living with Bailey for the past six months. In her videos, Bailey gives glimpses of daily life with her dad and the ups and downs of helping him manage a life with missing memories.


One thing Bailey's videos show is that dementia is not a one-size-fits-all condition. As with most people with dementia, Scott has good days and bad days, but his ability to communicate what he's feeling even when he's confused is quite incredible.

Not being remembered by your own parent, however, isn't easy. And figuring out how to communicate with a loved one who doesn't know who you are without scaring or confusing them further is a huge challenge. But Bailey shared an exchange with her father that beautifully illustrates how their emotional connection is still there, even if he doesn't remember why.

In the video, Scott tells Bailey that her calling him "Dad" freaks him out. He says he has feelings for her and knows that she is important to him, but that he doesn't think he's her dad. He also says he doesn't want to hurt her feelings. She explains how she feels about him and offers to call him Scott if he prefers, and the whole interaction is just beautiful.

Watch:

@baileyrosek

Some days are easier than others.. i miss you dad, but i love you very much, Scott. #dementiaawareness #wernickesencephalopathy #caregiversoftiktok #parentofmyparents

"Some days are easier than others," Bailey wrote in the caption. "I miss you dad, but I love you very much, Scott."

Seeing Bailey's family navigate the hard parts as well as the healing that has come from Scott's illness is truly eye-opening. Those who are going through a similar journey might find inspiration in how they communicate with one another and those who haven't seen much dementia firsthand can learn what it might look like.

Of course, each person's experience is unique and you can't always apply what works for one person to another, but there's a lot all of us can learn from witnessing others handle something so difficult with grace and patience and love.

@baileyrosek

I love you dad. If you haven’t yet, go hug your parents/loved ones today. #dementiaawareness #youarenotalone #ilovemyparents #fyp #fatherdaughterlove

Bailey's family has experienced a change in Scott's behavior that has actually been positive in some ways. She has said he has become more pleasant to be around, and some of her videos showing his emotional accessibility and willingness to apologize for hurtful things he'd done are so moving.

@baileyrosek

People change and we believe in second chances. As sad as this has been, it’s a second chance for all of us 🤍#caregiversoftiktok #foryoupage #wernickekorsakoffawareness #tbisurvivor #parentofmyparents #ilovemyfamily

And Bailey's way of entering his world, helping him figure out what's real when he's open to it and going along with where and who he thinks he is when correcting him would just cause more confusion is a masterclass in communicating with someone with dementia. It can't be easy, but she excels at it.

@baileyrosek

Replying to @hiddenstyle4 we have happy convos all the time! :) #caregiversoftiktok #dementiaawareness #wernickesencephalopathy #wetbrain #parentofmyparents

Thanks to Bailey for being vulnerable enough to share her family's experiences so the world can see examples of patiently loving someone through dementia, and so those who are going through something similar know they are not alone.

All images provided by Prudential Emerging Visionaries

Collins after being selected by Prudential Emerging Visionaries

True

A changemaker is anyone who takes creative action to solve an ongoing problem—be it in one’s own community or throughout the world.

And when it comes to creating positive change, enthusiasm and a fresh perspective can hold just as much power as years of experience. That’s why, every year, Prudential Emerging Visionaries celebrates young people for their innovative solutions to financial and societal challenges in their communities.

This national program awards 25 young leaders (ages 14-18) up to $15,000 to devote to their passion projects. Additionally, winners receive a trip to Prudential’s headquarters in Newark, New Jersey, where they receive coaching, skills development, and networking opportunities with mentors to help take their innovative solutions to the next level.

For 18-year-old Sydnie Collins, one of the 2023 winners, this meant being able to take her podcast, “Perfect Timing,” to the next level.

Since 2020, the Maryland-based teen has provided a safe platform that promotes youth positivity by giving young people the space to celebrate their achievements and combat mental health stigmas. The idea came during the height of Covid-19, when Collins recalled social media “becoming a dark space flooded with news,” which greatly affected her own anxiety and depression.

Knowing that she couldn’t be the only one feeling this way, “Perfect Timing” seemed like a valuable way to give back to her community. Over the course of 109 episodes, Collins has interviewed a wide range of guests—from other young influencers to celebrities, from innovators to nonprofit leaders—all to remind Gen Z that “their dreams are tangible.”

That mission statement has since evolved beyond creating inspiring content and has expanded to hosting events and speaking publicly at summits and workshops. One of Collins’ favorite moments so far has been raising $7,000 to take 200 underserved girls to see “The Little Mermaid” on its opening weekend, to “let them know they are enough” and that there’s an “older sister” in their corner.

Of course, as with most new projects, funding for “Perfect Timing” has come entirely out of Collins’ pocket. Thankfully, the funding she earned from being selected as a Prudential Emerging Visionary is going toward upgraded recording equipment, the support of expert producers, and skill-building classes to help her become a better host and public speaker. She’ll even be able to lease an office space that allows for a live audience.

Plus, after meeting with the 24 other Prudential Emerging Visionaries and her Prudential employee coach, who is helping her develop specific action steps to connect with her target audience, Collins has more confidence in a “grander path” for her work.

“I learned that my network could extend to multiple spaces beyond my realm of podcasting and journalism when industry leaders are willing to share their expertise, time, and financial support,” she told Upworthy. “It only takes one person to change, and two people to expand that change.”

Prudential Emerging Visionaries is currently seeking applicants for 2024. Winners may receive up to $15,000 in awards and an all-expenses-paid trip to Prudential’s headquarters with a parent or guardian, as well as ongoing coaching and skills development to grow their projects.

If you or someone you know between the ages of 14 -18 not only displays a bold vision for the future but is taking action to bring that vision to life, click here to learn more. Applications are due by Nov. 2, 2023.
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