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hero boy

Jodie Hood

Louis Hood making an OR bed look good!

Just an hour after a critical heart surgery, Louis Hood lifted his voice to Elton John’s “I’m Still Standing,” a fitting anthem for the resilient young boy born with a rare heart condition. The moving performance brought tears to the eyes of his mother, Jodie Hood, who shared that this small act was a reminder of Louis' strength and spirit.

Louis, who lives in Redruth, Cornwall, was born with a condition that left him with half a functioning heart. Since birth, he has undergone three open-heart surgeries, starting when he was just nine days old. As he approached his fourth birthday, Louis needed another operation to insert a stent into his pulmonary artery, a procedure that brought the family to Bristol Children’s Hospital.


"We call him our mountain-mover as he loves to defy the odds."

— Jodie Hood

Jodie, overwhelmed with emotion, explained the impact of Louis' spontaneous song. “He started singing from the movie Sing on his iPad—it was incredibly moving,” she said.

A dream trip to Disneyland Paris

With Louis’ condition demanding continuous medical care, his family lives with the daily uncertainty of what the future holds. But amid the challenges, they are hoping to create joyful memories. Louis dreams of a magical trip to Disneyland Paris, and with his love for all things Disney, his family is dedicated to making this happen.

To fund this dream, Louis’ grandmother, Sharon Van Beusekom, started a JustGiving fundraiser to help cover the expenses for Louis and his family. The goal of £8,000 would not only pay for the trip but also account for the costs associated with Louis' special medical needs during travel.

"Louis has one big dream: to visit Disneyland Paris... memories that will bring comfort and happiness no matter what the future holds."

— Sharon Van Beusekom

“Whether we have a few months or a few precious years, we’re living with the constant fear of losing him,” Sharon shared. “Louis is such an amazing little boy with a zest for life and a smile that lights up every room. He deserves this chance to make happy memories with his family.”

A legacy of resilience and joy

Louis Hood and his contagious smile.Sharon Van Beusekom via Just Giving

The Hood family has been through incredible challenges, especially with the recent loss of a young friend, Faith, who had the same condition as Louis but sadly passed away at just 22 months old. This heartbreaking reminder of the fragility of life has further motivated them to fulfill Louis' wish, despite the challenges ahead.

Support has already begun pouring in, with friends, family, and well-wishers rallying around Louis. The family’s story has gained traction online as well, with more than 2,000 Reddit users expressing their admiration and support. One commenter, u/Hayes4prez, noted, "Pretty tough kid, I hope he’s up playing again soon." Another, u/masteremrald, commented, "Four open heart surgeries at such a young age is crazy. Amazing to see how he is able to stay positive after all that!"

"Makes a grown man tear up 🥹"

— @AbleEnd3877

Jodie, Louis’ mother, has even participated in sponsored runs to help boost the fund. The family is hoping for a little more support to reach their target, and any surplus will be donated to Heart Heroes, a charity supporting families with children facing serious heart conditions.

Jodie expressed gratitude for everyone’s generosity, saying, “Louis has overcome so much, and any help we can get to bring a little happiness his way means the world to us. This is our way of giving him something to look forward to, and we are so grateful to everyone who has helped make this possible.”

"This is our way of giving him something to look forward to, and we are so grateful."

— Jodie Hood

For anyone who would like to contribute, donations can be made on the JustGiving page dedicated to Louis’ dream trip. With this support, Louis’ family hopes to bring joy and peace to their brave little boy, no matter what the future holds.