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dave steele

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'Blind Poet' turned the loss of his vision into an opportunity to build a community on Facebook

At his most vulnerable moment, he found the gift of self-expression.

via Meta Community Voices

Dave Steele aka "The Blind Poet."

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Dave Steele was diagnosed with retinitis pigmentosa (RP) in 2014 and told that he would slowly lose his vision until he was completely blind. Imagine the pain and stress of knowing that every day your sense of sight will slowly diminish until you fall into darkness.

Steele was not only losing his sight, but after his diagnosis, he felt he lost his purpose.

The diagnosis came with an added gut punch: His children also have a 50% chance of having RP. Steele lost his job, his family couldn’t afford the rent on their home and the waiting list for government benefits was nine months. "I was feeling more guilty about the pressure I was putting on my family and that, in turn, was affecting my vision loss as well and I became more anxious and more isolated because of it,” he told Henshaws InSights.

As his troubles mounted, Steele found solace in talking to others coping with sight loss through Facebook community groups. “That was a real massive, massive help to me,” he told Henshaws InSights.

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