UPDATE (5/8/2014): The folks at SoulPancake did a follow-up documentary short on his family in the year since Zach's passing, which you can watch here:
You never know what to expect until you lose someone dear to your heart this way. I lost my dad to pancreatic cancer far too early. If you wouldn't mind sharing this so more people hear Zach's story, I'd love it. His family has requested that anyone who is interested in helping change the fate for future children like Zach donate to the research fund set up on his behalf. His form of cancer rarely gets enough research funding because it's so rare, so donations like yours are really important.
You can also buy his album on iTunes, with the proceeds going to the research fund.