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For parents of disabled kids, one of life's biggest struggles comes from outside the home.

Everyone knows being a parent is hard. But parenting a disabled child carries challenges you don't expect.

Many of us in this world are juggling multiple tasks at one time. On any given day, we are nurses, therapists, advocates, teachers, personal care assistants, and administrative assistants managing their endless paperwork.

When I had my son, I expected to face these day-to-day difficulties of parenting a disabled child. But the challenge I wasn't expecting came from outside the home.

For years, I have always wondered why friends seem to drop like flies from my life. What am I doing wrong? Why do I struggle making and keeping friends?

[rebelmouse-image 19533644 dam="1" original_size="2681x2361" caption="Photo by Jordan Whitt/Unsplash." expand=1]Photo by Jordan Whitt/Unsplash.

For some parents of disabled children, friendships can feel almost impossible to maintain.

As our children grow and we move deeper into the trenches of childhood, we sometimes find that our lives are very isolated from the world around us. We turn on our laptops, tablets, or phones and see pictures of other parents at social events, throwing elaborate parties or cheering on their kids at sports. These moments can make our stomachs sink, our hearts hurt, and remind us just how isolated our lives have become.

We are maxed out with the daily care of our children, and every aspect of our lives is wrapped up in the complications and extra fighting needed to raise our children successfully.

Most of us are trying to balance the needs of our children, and their care is so extensive we are moving from one crisis to the next on a daily basis. My son demands 100% of my attention, and due to the complexity of his care, all of my energy is focused on his treatments, appointments, researching, and managing my emotions about the toll his care takes on my psyche.

[rebelmouse-image 19533647 dam="1" original_size="5678x3884" caption="Photo by Cristian Newman/Unsplash." expand=1]Photo by Cristian Newman/Unsplash.

The fact is, I’m not a very good friend.

I don’t have a lot of free time. My schedule is always changing, and it is impossible for me to keep plans. My son’s care wears me out physically and emotionally. Due to the high-stress life I lead, I am short of patience, and I can get easily annoyed by people. I say things I don’t mean out of frustration, and I take well-meaning comments too personally.

On the rare opportunity I can stick to my plans, the thought of socializing leaves me with a deep sense of anxiety. I know that I will have to talk about my life, and talking about my life makes me feel exhausted. When I have a chance to get away from my house, the last thing I want to do is talk about what is going on in my life.

Frequently the events I attend are in larger groups, and the conversation is small talk related to raising children. Parents want to talk about their children, and for many, it’s a way to bond. They commiserate about the woes of parenting. Yet, I always feel like an outsider because I don’t relate to their stories, and I have little of my own to contribute. I’m often lost in my thoughts, completely preoccupied with what I need to do for my son.

[rebelmouse-image 19533648 dam="1" original_size="5616x3744" caption="Photo by Megan Lewis/Unsplash." expand=1]Photo by Megan Lewis/Unsplash.

I might be near people, but I’m a million miles away.

I listen to amazing stories about vacations, outings, and all the milestones that their children have accomplished. When I hear others having wonderful lives full of happy memories, I find that I sink further away from the conversation. I nod my head and smile, but inside I’m screaming because our lives are so different and it feels so unfair. My son hasn’t met those milestones, we never go on vacation, and our lives are spent moving from one office to another for appointments.

If I do speak, I know that I will have to share our journey. Talking to anyone about our life has a way of making me feel incredibly anxious. After the stress of a day caring for him, I don’t want to recap what is going on, nor do I want to answer questions. I also don’t want anyone feeling sorry for us. More often than not, I find myself not saying much at all.

Eventually, the night ends. I feel depleted, sad, and I am reminded how out of place I feel in the world. I push everyone away from me because it is so hard to be around anyone. I don’t like being reminded our life is different, and I can’t handle how that realization makes me feel. Selfishly I can’t focus my energy on anyone other than my child, and helping friends navigate their problems is impossible for me. I realize I just cannot be the friend I need to be.

Texts go unreturned, I stop answering messages and emails on my social media, and I quit accepting invites or attending events. The truth is I push everyone away because I’m emotionally drained by my feelings. I know our life is different, I hate that my child is dealing with so much adversity, and I can’t relate to anyone around me.

In the end, friendships dissolve because I can’t contribute, keep plans, or give anything to anyone other than my son.

I’ve learned over the years that I’m not alone in my feelings.

Other parents of disabled children have shared these same feelings with me. The lives of parents of disabled children are not typical, and we are keenly aware of our differences.

Our lives are filled with appointments, therapy, and endless paperwork that will take us away from the world as we care for our children. We are not readily accessible to our friends for long periods of time. Many of us feel incredibly guilty for not being better friends, but most of us accept that we are incapable of nurturing meaningful relationships outside of our immediate family.

We wish more than anything that people understood that even though we can’t always be there for people — we desperately need them in our lives. Even though we can’t go to events, we wish people would remember to invite us. We wish we didn’t feel so out of place, and hope that one day we will find someone who gets our life.

More importantly, we wish we were capable of being better friends, and that we could relate to other parents. Our lives as parents of disabled children make having friendship a tough challenge, and for many of us giving up is more natural than fighting.

We fight for everything for our children, so when it comes to the fight to maintain relationships, we need a little more help from our friends.

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Now's your chance to help someone doing good in your community win $1000 towards the charity of their choice

Upworthy and P&G are back with the #ActsOfGood Awards.

Images provided by P&G

Three winners will be selected to receive $1000 donated to the charity of their choice.

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Doing good is its own reward, but sometimes recognizing these acts of kindness helps bring even more good into the world. That’s why we’re excited to partner with P&G again on the #ActsOfGood Awards.

The #ActsOfGood Awards recognize individuals who actively support their communities. It could be a rockstar volunteer, an amazing community leader, or someone who shows up for others in special ways.

Do you know someone in your community doing #ActsOfGood? Nominate them between April 24th-June 3rdhere.Three winners will receive $1,000 dedicated to the charity of their choice, plus their story will be highlighted on Upworthy’s social channels. And yes, it’s totally fine to nominate yourself!

We want to see the good work you’re doing and most of all, we want to help you make a difference.

While every good deed is meaningful, winners will be selected based on how well they reflect Upworthy and P&G’s commitment to do #ActsOfGood to help communities grow.

That means be on the lookout for individuals who:

Strengthen their community

Make a tangible and unique impact

Go above and beyond day-to-day work

The #ActsOfGood Awards are just one part of P&G’s larger mission to help communities around the world to grow. For generations, P&G has been a force for growth—making everyday products that people love and trust—while also being a force for good by giving back to the communities where we live, work, and serve consumers. This includes serving over 90,000 people affected by emergencies and disasters through the Tide Loads of Hope mobile laundry program and helping some of the millions of girls who miss school due to a lack of access to period products through the Always #EndPeriodPoverty initiative.

Visit upworthy.com/actsofgood and fill out the nomination form for a chance for you or someone you know to win. It takes less than ten minutes to help someone make an even bigger impact.

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Expert says there's only one laundry cycle you ever need, no matter what's being washed

Straight from Patric Richardson, the "Laundry Guy" himself.

Representative image from Canva

Because who can keep up with which laundry settings is for which item, anyway?

Once upon a time, our only option for getting clothes clean was to get out a bucket of soapy water and start scrubbing. Nowadays, we use fancy machines that not only do the labor for us, but give us free reign to choose between endless water temperature, wash duration, and spin speed combinations.

Of course, here’s where the paradox of choice comes in. Suddenly you’re second guessing whether that lace item needs to use the “delicates” cycle, or the “hand wash” one, or what exactly merits a “permanent press” cycle. And now, you’re wishing for that bygone bucket just to take away the mental rigamarole.

Well, you’re in luck. Turns out there’s only one setting you actually need. At least according to one laundry expert.

While appearing on HuffPost’s “Am I Doing It Wrong?” podcast, Patric Richardson, aka The Laundry Evangelist, said he swears by the “express” cycle, as “it’s long enough to get your clothes clean but it’s short enough not to cause any damage.”

Richardson’s reasoning is founded in research done while writing his book, “Laundry Love,” which showed that even the dirtiest items would be cleaned in the “express” cycle, aka the “quick wash” or “30 minute setting.”


Furthermore the laundry expert, who’s also the host of HGTV’s “Laundry Guy,” warned that longer wash settings only cause more wear and tear, plus use up more water and power, making express wash a much more sustainable choice.

Really, the multiple settings washing machines have more to do with people being creatures of habit, and less to do with efficiency, Richardson explained.

“All of those cycles [on the washing machine] exist because they used to exist,” he told co-hosts Raj Punjabi and Noah Michelson. “We didn’t have the technology in the fabric, in the machine, in the detergent [that we do now], and we needed those cycles. In the ’70s, you needed the ‘bulky bedding’ cycle and the ‘sanitary’ cycle ... it was a legit thing. You don’t need them anymore, but too many people want to buy a machine and they’re like, ‘My mom’s machine has “whitest whites.”’ If I could build a washing machine, it would just have one button — you’d just push it, and it’d be warm water and ‘express’ cycle and that’s it.”
washing machine

When was the last time you washed you washing machine? "Never" is a valid answer.

Canva

According to Good Housekeeping, there are some things to keep in mind if you plan to go strictly express from now on.

For one thing, the outlet recommends only filling the machine halfway and using a half dose of liquid, not powder detergent, since express cycles use less water. Second, using the setting regularly can develop a “musty” smell, due to the constant low-temperature water causing a buildup of mold or bacteria. To prevent this, running an empty wash on a hot setting, sans the detergent, is recommended every few weeks, along with regularly scrubbing the detergent drawer and door seal.

Still, even with those additional caveats, it might be worth it just to knock out multiple washes in one day. Cause let’s be honest—a day of laundry and television binging sounds pretty great, doesn’t it?

To catch even more of Richardson’s tips, find the full podcast episode here.


This article originally appeared on 2.4.24

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Convertible sleeping bags turn into insulated tents for people experiencing homelessness

Innovation at its best.

via Pinterest

A demonstration of the Satellite Shelter.

When blizzards line up to rip through the Northeast, schools close, flights are canceled, and people even board up their houses. Though missions and homeless shelters do what they can to provide safety to those who have no homes to go to, thousands of people still have to weather the cold outside.

At Carnegie Mellon University's 2015 Impact-a-Thon, students were challenged to provide a temporary low-cost shelter for homeless people during the winter.

One team of students came up with the "Satellite Shelter," an insulated sleeping bag that converts into a tented structure. The students used mylar, a reflective material frequently used in greenhouses and space blankets, and wool blankets to ensure the shelter would keep anyone in it safe from the cold.

"We wanted to make sure it was super-portable and durable so that it's easy to carry," said student Linh Thi Do, who worked on the project. "We have wheels on it so it's easy to move from place to place."

Solutions like this one are handy in an emergency. Perhaps, however, other cities should take note of the city of New Orleans' success in providing long-term housing solutions for its homeless veterans. The only perfect solution to homelessness is giving people permanent homes to go to at night.


This article originally appeared on 01.26.15

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Music savant Kodi Lee gives a completely new version of 'Bohemian Rhapsody' on 'AGT'

Lee gave "America's Got Talent" audiences chills with his haunting cover.

America's Got Talent/Youtube

Kodi Lee has become an "AGT" fan favorite with his next level skills


Since 2019, Kodi Lee has wowed “America’s Got Talent” audiences with his next-level musical skills. That goes for whether he’s performing touching original works or putting his own personal touch on well-known songs.

For “America’s Got Talent: Fantasy League,” the music savant was guided by his mentor Howie Mandel to cover “Bohemian Rhapsody” by Queen.

It’s hard to imagine a version of this fan-favorite tune you haven’t already heard before, since the song has been covered quite a few times. But once again Lee delivered something epic and completely unique.

Even though judges Mel B and Heidi Klum still prefer Lee’s original songs, all applauded his haunting and emotional piano rendition of the rock-n-roll anthem.

Simon Cowell even said “You use these words ‘Star Quality’ a lot, but you genuinely, Kodi, over the years we’ve got to know you, you’ve just got better as an artist. You’ve never given up, and the Finals just wouldn’t be the same without you in it this year.”

Other viewers applauded Lee for one-of-a-kind performance, agreeing that he did freddie Mercury proud.

One wrote, “‘You can do whatever you want to do in my music, just don't make it boring’ -Freddie. What a magical performance.”

Another added, “Kodi has an amazingly rare talent to be able to sing across different musical genres. He owns them all!!!”

Last but not least, I think this comment sums up the general consensus pretty well: "This version is unlike anything anyone has ever seen before. It’s truly a masterpiece. Kodi is an amazing gift to our world. He continues to change the world just by being himself."

Watch below. And enjoy.

This article originally appeared on 2.13.24

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Family

A letter to my mother-in-law who spoiled my sons

"It's pointless to dwell on regrets, but I often think about how I had it all wrong. I was so wrong in how I perceived your generosity."

Tina Platamura


You always stole my thunder. You gave them everything they wanted. You never said no when they asked for anything.

Tina Platamura

A second helping of dessert. Candy before dinner. A few more minutes in the bath. Money for the ice cream truck.

I struggled to show you respect and appreciation while trying to make sure you didn't spoil my children. I thought you would turn them into “selfish brats" by giving them everything they wanted. I thought they might never learn to wait, to take turns, to share, because you granted their wishes as soon as they opened their mouths and pointed.

You held each one of my babies long after they fell asleep. Didn't you understand that I needed them to learn to fall asleep on their own?

You ran to them as soon as they made the tiniest sound. How would they ever learn to self-soothe?

I resented you for buying the best and most expensive gifts on their birthdays and on Christmas. How could I possibly compete with you?

"I thought they might never learn to wait, to take turns, to share, because you granted their wishes as soon as they opened their mouths and pointed."

And how they loved afternoons spent with you. You made their favorite things for dinner — three different meals for three different boys. And you always had a little surprise. A present, candy, or a special treat. I didn't want them to associate you with gifts and sweets. I thought they should love you for you. I tried to tell you this, but you wouldn't listen.

I spent a lot of time wondering why you did all these things and how I could get you to ease up. I know grandmothers are supposed to “spoil the kids" then send them home, but you were ... ridiculous.

Until you were gone.

I had to hold my boys and tell them that their grandma died. It didn't seem possible — you were supposed to be there for all the other special moments: proms, graduations, weddings. But they lost their grandma too soon and too suddenly. They were not ready to say goodbye.

During those years when I wished you'd stop spoiling them, I never thought about how much you loved them. So much that you showed it in every way possible. Your cooking. The gifts. The candy and sweets. Your presence. The way you could recount every detail of a special moment, whether it was a perfect catch in the outfield or a sweet and slightly off-key note sung at a school concert. Your grandmotherly love for them knew no bounds. Your heart poured love from every place possible — your kitchen, your pocketbook, your words, and your tireless arms.

It's pointless to dwell on regrets, but I often think about how I had it all wrong. I was so wrong in how I perceived your generosity.

My kids, now in their teens, miss you dearly. And they don't miss your gifts or your money. They miss you.

They miss running to greet you at the door and hugging you before you could step in. They miss looking up at the bleachers and seeing you, one of their biggest fans, smiling and enthralled to catch their eye. They miss talking to you and hearing your words of wisdom, encouragement and love.

If I could speak to you one more time, I would tell you that every time a precious moment steals my heart, every time I watch them arrive at a new milestone, and every time they amaze me with their perseverance, talents, or triumphs, I think of you. And I wish that they could have you back.

Come back and love them one last time, like no one else in the world but a grandmother could. Bring your sweets and surprises. Reward them with gifts for the smallest accomplishments. Painstakingly prepare their favorite meals. Take them anywhere they want to go. All and only because you love them.

Come back and see how much they've grown. Watch each boy becoming his own version of a young man. Be in awe with me as we admire how family, friendship, time, and love helped them grow so beautifully over the years.

The more I long for you to come back, though, the more I realize that in a way, you never left.

assets.rebelmouse.io

I understand now. I know you loved them in every way you could. I know that being their grandma gave you joy and purpose. And of course I know that you can't come back, but I do know that your love for them will always remain. Your love built them and sheltered them in ways that cannot be described. Your love is a big part of who they are and what they will become as they grow. For this, and for every treat and gift, and every time you held them too long or consoled them too much or let them stay up too late, I will always thank you.

And I will wish a million times that you could do it all again.


This article was written by Tina Plantamura and originally appeared on 04.14.16

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A popular optical illusion with a mindbending twist proves we can't trust our senses

Mind. Blown.

Curiosity Show/YouTube

The Ames window trick.

Optical illusions are universally beloved for how they trick our brains and blow our minds. There's a reason we enjoy magic shows and Escher paintings and are mesmerized by fake oases in the desert. We love seeing things that bend our perceptions of reality, and the science behind the magic always proves fascinating as well.

The Ames window is a pretty well-known optical illusion, but it's always cool to see. When spun, the angled window appears to oscillate back and forth instead of spin all the way around. But this video adds a twist that makes the effect even more mindbending—our brains simply can't process objective reality mixed with an optical illusion.


The YouTube channel Curiosity Show explains the science of the illusion and gives a DIY demonstration for making your own Ames window. But wait until the pen gets taped to the window and spun. This is some real-life magic right here. Mind. Blown.


This article originally appeared on 02.21.20

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